Evidence map›Paper›PMID 41099817›Full record

ArticleEuropean journal of pediatrics2025

Identification and stratification tools for children with chronic pathology and complexity: systematic scoping review.

Dorleta Lopez de Suso Martinez de Aguirre, Carlos Martín Gómez, Iñigo de Noriega Echevarría, Ricardo Martino-Alba, Raquel Jiménez García

Abstract readScoping Review
PubMed Publisher
In one paragraph

Article in European journal of pediatrics, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Dorleta Lopez de Suso Martinez de AguirrePaediatric Comprehensive Palliative Care Unit, Niño Jesús University Children's Hospital, Madrid, Spain. dlopezsuso@gmail.com.
Carlos Martín GómezFoundation for Biomedical Research, Niño Jesús University Children's Hospital, Madrid, Spain.
Iñigo de Noriega EchevarríaPaediatric Comprehensive Palliative Care Unit, Niño Jesús University Children's Hospital, Madrid, Spain.
Ricardo Martino-AlbaPaediatric Comprehensive Palliative Care Unit, Niño Jesús University Children's Hospital, Madrid, Spain.
Raquel Jiménez GarcíaDepartment of Paediatrics, Niño Jesús University Children's Hospital, Madrid, Spain.

Funding

Office of Family, Youth and Social Affairs from the Region of Madrid, Spain Programme 232F, Item 22706
6 · The paper itself

Abstract

To identify tools for stratifying children with complex chronic conditions (CCC), evaluate their psychometric properties, and assess their suitability for widespread application. A scoping review was conducted using six electronic databases, targeting articles that included tools for identifying and stratifying children with CCC. Articles were selected if they were published within the last decade, focused on populations aged 0-25 years, and met predefined eligibility criteria. There were no language restrictions. Articles eligible for full-text review were screened by two independent reviewers with discrepancies resolved by a third reviewer. After this first extraction the original articles that recorded psychometric properties and characteristics of tools were consulted. From 5,422 articles, 16 were included, identifying nine tools. Key tools included PedCom, Expanded PedCom, and the Pediatric Medical Complexity Algorithm. Expanded PedCom was highlighted for its numerical precision, stratification capabilities, and excellent psychometric properties, classifying children into four levels of complexity.

conclusionsTools like Expanded PedCom can standardise the classification of children with CCC, supporting tailored resource allocation and global comparisons. Incorporating such tools into healthcare systems ensures equitable resource distribution and improved care pathways. Expanded PedCom is recommended for use in English and Spanish contexts due to its precision and practicality. WHAT IS KNOWN: • Children with chronic conditions and complex needs represent a growing population worldwide, yet their identification and stratification remain heterogeneous. The use of validated tools specifically designed for this population would enable more effective resource management to meet their needs. WHAT IS NEW: • The review identified eight instruments for stratifying children with complex chronic conditions (CCC), with the Expanded PedCom emerging as the most robust due to its numerical strength and sound psychometric properties. • The scientific generalisation of stratification tools enables impactful national and global strategies.

Indexed as

AdolescentChildChild, PreschoolChronic DiseaseHumansInfantInfant, NewbornPsychometricsCSHCNIdentificationStratification

Identifiers

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.