Evidence map›Paper›PMID 41098031›Full record

ArticleMovement disorders clinical practice2026

A Short Version of Carers' Quality of Life Questionnaire for Parkinsonism: Data from Progressive Supranuclear Palsy Network.

Arianna Cappiello, Giovanna Calandra-Buonaura, Roberto Ceravolo, Saverio Coralli, Sofia Cuoco, Eleonora Del Prete, Francesca di Biasio, Daniela Frosini, Vittorio Gualtieri, Davide Mascioli and 27 more

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Article in Movement disorders clinical practice, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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1 · What the graph read from it

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2 · The registry

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3 · Its place in the literature

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4 · The record

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5 · Who and what money

Authors and funding

37 authors.

Arianna CappielloCenter for Neurodegenerative diseases (CEMAND), Department of Medicine, Surgery and Dentistry "Scuola Medica Salernitana", University of Salerno, Salerno, Italy.
Giovanna Calandra-BuonauraDepartment of Biomedical and NeuroMotor Sciences, Alma Mater Studiorum-University of Bologna, Bologna, Italy.
Roberto CeravoloNeurology Unit, Department of Clinical and Experimental Medicine, University of Pisa, Pisa, Italy.ORCID https://orcid.org/0000-0003-1412-9406
Saverio CoralliDepartment of Neuroscience, Rehabilitation, Ophthalmology, Genetics, Maternal and Child Health (DINOGMI), University of Genoa, Genoa, Italy.
Sofia CuocoCenter for Neurodegenerative diseases (CEMAND), Department of Medicine, Surgery and Dentistry "Scuola Medica Salernitana", University of Salerno, Salerno, Italy.ORCID https://orcid.org/0000-0002-5755-4544
Eleonora Del PreteNeurology Unit, Department of Clinical and Experimental Medicine, University of Pisa, Pisa, Italy.
Francesca di BiasioIRCCS San Martino General Hospital, Genoa, Italy.ORCID https://orcid.org/0000-0003-3955-8485
Daniela FrosiniNeurology Unit, Department of Clinical and Experimental Medicine, University of Pisa, Pisa, Italy.
Vittorio GualtieriDepartment of Neuroscience, Rehabilitation, Ophthalmology, Genetics, Maternal and Child Health (DINOGMI), University of Genoa, Genoa, Italy.
Davide MascioliNeurology Unit, Department of Systems Medicine, Tor Vergata University of Rome, Rome, Italy.
Luisa SambatiIRCCS, Institute of Neurological Sciences, Bologna, Italy.
Tommaso SchirinziNeurology Unit, Department of Systems Medicine, Tor Vergata University of Rome, Rome, Italy.
Alessandro StefaniNeurology Unit, Department of Systems Medicine, Tor Vergata University of Rome, Rome, Italy.ORCID https://orcid.org/0000-0002-1806-8922
Elisa UmbertiniDepartment of Biomedical and NeuroMotor Sciences, Alma Mater Studiorum-University of Bologna, Bologna, Italy.
Marco AielloIRCCS SYNLAB SDN, Naples, Italy.
Matteo CostanzoDepartment of Human Neuroscience, University of Rome Sapienza, Rome, Italy.
Rosa de MiccoDepartment of advanced medical and surgical sciences, University of Campania Luigi Vanvitelli, Caserta, Italy.ORCID https://orcid.org/0000-0002-6397-8888
Giovanni FabbriniDepartment of Human Neuroscience, University of Rome Sapienza, Rome, Italy.
Gaetano FaillaClinic for Movement Disorders, Cannizzaro Hospital, Catania, Italy.
Chiara LongoDepartment of Neurology, Santa Chiara Hospital, Trento, Italy.ORCID https://orcid.org/0000-0001-6904-6494
Maria Chiara MalagutiDepartment of Neurology, Santa Chiara Hospital, Trento, Italy.
Nicola ModugnoNeurology Unit, IRCCS Neuromed, Pozzilli, Italy.
Enrica OlivolaNeurology Unit, IRCCS Neuromed, Pozzilli, Italy.
Noemi Maria Carola RussoClinic for Movement Disorders, Cannizzaro Hospital, Catania, Italy.
Alessandro TessitoreDepartment of advanced medical and surgical sciences, University of Campania Luigi Vanvitelli, Caserta, Italy.
Andrea CiammolaDepartment of Neurology and Laboratory of Neuroscience, IRCCS Istituto Auxologico Italiano, Milan, Italy.
Carlo ColosimoDipartiment of Neurology, Santa Maria University Hospital, Terni, Italy.
Anna de RosaNeurology Unit, Federico II University, Naples, Italy.
Laura de TogniComplex Operative Unit of Neurology, Magalini Hospital, Verona, Italy.
Alessio di FonzoIRCCS Ca' Granda Ospedale Maggiore Policlinico, Neurology Unit, Milan, Italy.ORCID https://orcid.org/0000-0001-6478-026X
Vincenzo MoschellaNeurology Unit, San Filippo Neri Hospital ASL Roma1, Rome, Italy.
Andrea PilottoDepartment of Clinical and Experimental Sciences, University of Brescia, Brescia, Italy.
Francesca SpagnoloDepartment of Neurology, Antonio Perrino Hospital, Brindisi, Italy.
Roberta ZangagliaParkinson's Disease and Movement Disorders Unit, IRCCS Mondino Foundation, Pavia, Italy.
Paolo BaroneCenter for Neurodegenerative diseases (CEMAND), Department of Medicine, Surgery and Dentistry "Scuola Medica Salernitana", University of Salerno, Salerno, Italy.
Marina PicilloCenter for Neurodegenerative diseases (CEMAND), Department of Medicine, Surgery and Dentistry "Scuola Medica Salernitana", University of Salerno, Salerno, Italy.ORCID https://orcid.org/0000-0001-9025-137X
PSP‐NET study group

Funding

Fondazione LIMPE per il Parkinson Onlus
6 · The paper itself

Abstract

BACKGROUND AND

objectivesCaregivers of progressive supranuclear palsy (PSP) patients frequently show significant distress. The Parkinsonism Carers quality of life (QoL) (PQoL Carer) is a valid tool evaluating the effect of PSP on caregivers' QoL. Main aim of the present study was to develop a short version of the PQoL Carer, named PSP-ShoQoL Carer.

methodsPQoL Carer was administered within the PSP-NET. Participants underwent clinical, motor, cognitive, and behavioral evaluations.

resultsData from 344 participants were included. The final PSP-ShoQoL Carer included eight items. The internal consistency was high (Cronbach's α = 0.867) and PSP-ShoQoL Carer showed also good acceptability, reliability, and validity. The PSP-ShoQoL Carer showed a significant correlation with caregivers' standard measures of QoL and with patients' motor, cognitive, and behavioral characteristics, such as neuropsychiatric symptoms. Finally, PSP-ShoQoL Carer showed an appropriate sensitivity to change over 6-month follow up.

conclusionsPSP-ShoQoL Carer is a reliable and valid time-saving tool for the assessment of caregivers' QoL in PSP.

Indexed as

CaregiversParkinsonian DisordersQuality of LifeSupranuclear Palsy, ProgressiveAgedAged, 80 and overFemaleHumansMaleMiddle AgedReproducibility of ResultsSurveys and Questionnairesmotor symptomsneuropsychiatric symptomsprogressive supranuclear palsy

Identifiers

PMID41098031
PMCPMC13071305

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.