ArticleBMC palliative care2025
Perceptions and needs of NICU professionals regarding pediatric palliative care: a qualitative study compared with international literature.
Article in BMC palliative care, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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Abstract
backgroundPediatric palliative care (PPC) in neonatal intensive care units (NICU) presents ethical and emotional challenges for healthcare professionals. This study explores perceptions, experiences, and needs of NICU staff concerning PPC in the context of implementing collaboration with a pediatric palliative care reference center (PPCRC).
methodsA qualitative descriptive study using a semi-structured questionnaire was conducted among NICU professionals. Among 91 staff, 26 complete responses were thematically analyzed. Results were compared with international literature.
resultsRespondents highlighted emotional distress, communication challenges, need for ethical guidance, training gaps, and a desire for stronger integration of PPC teams. The collaboration with PPCRC was perceived as helpful by many, although underutilized by some.
conclusionNICU professionals face significant moral and emotional burdens in PPC. Strengthening training, enhancing team cohesion, and promoting earlier PPC integration may improve both care quality and staff well-being.
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