Evidence map›Paper›PMID 41091932›Full record

Observational studyThe Canadian journal of nursing research = Revue canadienne de recherche en sciences infirmieres2026

Validation of the French-Canadian Version of FAME, a Family Engagement Measurement Tool for the Intensive Care Unit.

Julia Duong, Jillian Kifell, Céline Gélinas, Shreya Udupa, Sarah A Beydoun, Amelia Stephenson, Michael Goldfarb

Registry-linked trialAbstract readValidation StudyObservational Study
In one paragraph

Observational study in The Canadian journal of nursing research = Revue canadienne de recherche en sciences infirmieres, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05659485 (Measuring Family Engagement in Care), which is not on this map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT05659485 recruitingnot on this map

Measuring Family Engagement in Care (The FAME Study)

Typeobservational_patient_registrySponsorLady Davis InstituteRan2023 to 2025Enrolled198ConditionsFamily Engagement, Patient-centered Care, Critical Care
3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Julia DuongFaculty of Medicine and Health Sciences, McGill University, Montreal, Quebec, Canada.ORCID 0009-0003-0829-6862
Jillian KifellLady Davis Institute for Medical Research, McGill University, Montreal, Quebec, Canada.ORCID 0009-0006-2009-4114
Céline GélinasLady Davis Institute for Medical Research, McGill University, Montreal, Quebec, Canada.
Shreya UdupaFaculty of Medicine and Health Sciences, McGill University, Montreal, Quebec, Canada.ORCID 0009-0001-8385-5770
Sarah A BeydounDivision of Experimental Medicine, McGill University, Montreal, Quebec, Canada.ORCID 0009-0001-7794-4056
Amelia StephensonLady Davis Institute for Medical Research, McGill University, Montreal, Quebec, Canada.
Michael GoldfarbLady Davis Institute for Medical Research, McGill University, Montreal, Quebec, Canada.ORCID 0000-0001-9790-1232

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

BackgroundA growing body of evidence supports the benefits of family engagement in patient care in intensive care units (ICUs). The English version of the FAMily Engagement (FAME) tool has been validated to measure ICU family engagement. This study aimed to validate the French-Canadian version of FAME.MethodsParticipant-level data from two prospective observational validation studies of the FAME tool, involving family members of patients from eight Canadian ICUs between May 2022 and July 2024, were included. Family members completed FAME in English or French-Canadian. Following discharge, family members completed questionnaires measuring care satisfaction and mental health (anxiety and depression). Reliability was assessed by internal consistency, and convergent and predictive validity by correlation between FAME and related outcome measures. A comparison of French and English scores was also conducted.ResultsA total of 104 family members completed the French-Canadian FAME questionnaire (age 57.0 ± 15.2 years; 62% women; 8% non-White; 53% spouse/partner). This version demonstrated internal consistency (Cronbach's alpha = 0.84) and convergent and predictive validity. FAME was associated with care satisfaction, but not anxiety or depression scores. There were no significant differences in overall FAME, care satisfaction, or anxiety and depression scores between the French and English cohorts (p > 0.05).ConclusionThe French-Canadian version of the FAME tool demonstrated reliability and convergent and predictive validity in French-Canadian speakers, supporting the inclusion of French-speaking family members in future studies utilizing the FAME tool to measure family involvement in ICU patient care.This study includes data from Measuring Family Engagement in Care (The FAME Study), ClinicalTrials.gov (NCT05659485): https://clinicaltrials.gov/study/NCT05659485.

Indexed as

FamilyIntensive Care UnitsAdultAgedCanadaFemaleHumansMaleMiddle AgedProspective StudiesPsychometricsReproducibility of ResultsSurveys and Questionnairesfamily-centered carefamily engagementintensive care unitperson-reported outcome measuresvalidation study

Identifiers

PMID41091932
PMCPMC12789257

What OpenQuestion holds

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LicenceCC BY-NC
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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.