ArticleAge and ageing2025
Lived experiences of missing with dementia and pathways to care: a qualitative study of carers' and professionals' perspectives.
Article in Age and ageing, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
1 citing paper in PubMed.
- Prevention and preparedness for missing episodes in the care of persons living with dementia in Sweden - a document study.BMC health services research · 2026Article
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5 authors.
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Abstract
backgroundPeople with dementia are at increased risk of going missing, which can lead to severe harm and distress. Despite the need for a better understanding of how to support people with dementia and their families affected, research in this area remains limited. This qualitative study explored lived experiences of families affected by missing incidents, and carers' and professionals' perspectives of how to improve care.
methodsA multi-perspective, qualitative framework analysis approach was undertaken with purposive sampling. Topic guides were developed in consultation with carers and professionals. We conducted in-depth semi-structured interviews and a focus group with key stakeholders (n = 33), which included carers of people with dementia (n = 9), police officers (n = 6), healthcare professionals (n = 12) and researchers (n = 6). Data were interpreted using thematic analysis to identify key themes. Reflexivity was considered throughout the process.
resultsFive key themes were identified: (i) risk and protective factors of missing incidents, (ii) gaps in reporting and response pathways, (iii) the use of technology for preventing and responding to missing incidents, (iv) the role of communities in prevention of harm, and (v) the need for integration of services through multi-agency collaboration.
conclusionThis study highlights key gaps on our national and global response to missing incidents in dementia. Understanding risk and protective factors and improving our public health response through multi-agency collaboration and clear care pathways, were considered key by stakeholders. Our findings offer actionable insights to inform future strategies and improve care for people with dementia who go missing.
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