Evidence map›Paper›PMID 41088448›Full record

ArticleResearch involvement and engagement2025

'Plugging the gap': development of a plain language glossary for statistical methodology research.

Sarah Booth, Molly Wells, Clareece Nevill, Lucy Teece, Barbara Czyznikowska, Gurpreet Grewal-Santini, Mary Mancini, Farheen Yameen, Suzanne C Freeman

Abstract read
In one paragraph

Article in Research involvement and engagement, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Developing Public-Friendly Visualisations to Improve PPIE Glossaries for Statistical Methodology Research.Health expectations : an international journal of public participation in health care and health policy · 2026
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Sarah BoothBiostatistics Research Group, Department of Population Health Sciences, University of Leicester, Leicester, UK. sarah.booth@le.ac.uk.
Molly WellsBiostatistics Research Group, Department of Population Health Sciences, University of Leicester, Leicester, UK.
Clareece NevillBiostatistics Research Group, Department of Population Health Sciences, University of Leicester, Leicester, UK.
Lucy TeeceBiostatistics Research Group, Department of Population Health Sciences, University of Leicester, Leicester, UK.
Barbara CzyznikowskaCentre for Ethnic Health Research, University of Leicester, Leicester, UK.
Gurpreet Grewal-SantiniCentre for Ethnic Health Research, University of Leicester, Leicester, UK.
Mary ManciniPublic Contributor, PPI-SMART (Patient and Public Involvement for Statistical Methodology and Research Techniques), University of Leicester, Leicester, UK.
Farheen YameenPublic Contributor, PPI-SMART (Patient and Public Involvement for Statistical Methodology and Research Techniques), University of Leicester, Leicester, UK.
Suzanne C FreemanBiostatistics Research Group, Department of Population Health Sciences, University of Leicester, Leicester, UK.

Funding

National Institute for Health and Care Research PDF-2018-11-ST2-007
6 · The paper itself

Abstract

backgroundPlain language glossaries of research-related terms are a useful resource for Patient and Public Involvement and Engagement (PPIE) activities. They can provide public contributors with a deeper understanding of aspects of the project such as the study design, the methods being used for data analysis, and the interpretation of results. However, whilst plain language glossaries of research-related terms exist, they do not always include definitions for concepts that are commonly used in statistical methodology research. The aims of this work were to (1 develop a plain language glossary of the statistical methodology research terms that were missing from the existing glossaries and 2) outline the process used to develop the glossary to aid researchers in producing a glossary relevant to their own research projects.

methodsBy conducting online searches and consulting members of the Biostatistics Research Group at the University of Leicester, we conducted a scoping exercise in August 2023 to identify glossaries aimed at members of the public that included definitions of statistical terms. We then reviewed the glossaries to develop a list of terms that are commonly used in the statistical methodology research conducted by the Biostatistics Research Group at the University of Leicester, which had not already been defined. Initial definitions of these terms were generated using ChatGPT (GPT-3.5). These were then refined and discussed with public contributors. Three cycles of PPIE feedback were used to further develop and update the definitions for use in the glossary.

resultsWe reviewed gaps in five existing glossaries and identified a list of 64 statistical terms to develop definitions for. These covered a range of concepts including different types of statistical models, Bayesian analysis, meta-analysis, and prognostic modelling. The feedback we received from public contributors focused on the level of language used, shortening the length of the definitions, and including examples to give context to the definitions.

conclusionsWe developed a plain language glossary of terms that are commonly used in statistical methodology research as a resource for public contributors taking part in PPIE. The glossary has been made available on the NIHR Leicester Biomedical Research Centre website ( https://leicesterbrc.nihr.ac.uk/ppismart/ppismart-definitions/ ).

Indexed as

CommunicationPatient and public involvement and engagement (PPIE)Statistical methodology research

Identifiers

PMID41088448
PMCPMC12523162

What OpenQuestion holds

Textmetadata
LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.