ArticleResearch involvement and engagement2025
Progressing participatory research with young people in India: how a youth advisory board supported a large mental health project in Bengaluru.
Article in Research involvement and engagement, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.
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Who cites it
4 citing papers in PubMed.
- Every VoiceCAN: the journey and contributions of a grassroots regional cancer advisory network.Research involvement and engagement · 2026Article
- The way we do things matters: the deep integration of lived experience in the a/part of the crowd project to respond to loneliness in young adults.Research involvement and engagement · 2026Article
- A scoping review of mental health problems and associated psychological factors pertinent to young people in education in low-and middle-income countries.Frontiers in public health · 2026Article
- Investing in youth public mental health in India: multi-stakeholder co-production of a whole school program to promote the mental health of Indian adolescents.Frontiers in public health · 2025Article
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Abstract
backgroundAction is needed to advance youth mental health research in India, and young people could significantly contribute to this. However, youth involvement in Indian research is rare, largely due to cultural norms around how research is done and the place of young people in society. There are calls for guidance on how youth involvement could be accelerated in India in ways that respect cultural norms. Youth Advisory Boards (YABs) are one means of doing this, but resources are needed to support their practical implementation in India. Our paper aims to promote the practice of YABs by detailing our experiences, challenges and solutions around hosting a YAB as part of a large mental health project based in Bengaluru, India. MAIN BODY: We hosted a YAB (n = 17 members) over three years in Project SAMA (Safeguarding Adolescent Mental Health in India). SAMA was a co-production and feasibility study of a whole-school program to address youth anxiety and depression. We viewed youth perspectives and lived experience as valuable forms of knowledge, and our ambition was for the YAB to enhance the relevance, cultural sensitivity, and effectiveness of our research. A systematic approach was adopted for the recruitment, engagement, and capacity building of YAB members. The team strived to support meaningful engagement and participatory decision-making. The YAB contributed significantly to refining our intervention, improving research tools, and contextualising findings. We identified key challenges and enablers in implementing the YAB in India.
conclusionDespite the stigma attached to mental health in India, our study shows that YABs are a feasible platform to support the involvement of young people in mental health research there. Based on our learning, we set out six recommendations to support YABs in Indian mental health research. These recommendations encourage research teams to: identify diversity and representation goals for YAB constitution; delineate the opportunities and boundaries of youth influence on project delivery; allocate sufficient resources to YAB recruitment, training, activities and communication; consider how young people's learning and accessibility needs and preferences can be ethically surfaced; and plan the monitoring and recording of the YAB's influence as well as the delivery and evaluation of reciprocal benefits to young people directly.
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