Evidence map›Paper›PMID 41072921›Full record

ArticleJMIR rehabilitation and assistive technologies2025

Perspectives From Multidisciplinary Professionals in France on Shared Patient Portals for Integrated Pediatric Rehabilitation: Qualitative Study.

Marietta Kersalé, Quan Nha Hong, Thomas Richard, Christèle Kandalaft Cabrol, Audrey Guevel, Emmanuelle Fily, Gaëlle Tisserand, Sylvain Brochard, Marie-Pascale Pomey, Christelle Pons

Registry-linked trialAbstract read
In one paragraph

Article in JMIR rehabilitation and assistive technologies, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06570148 (Towards the Development of a Digital Solution to Support the Exchange of Information in Paediatric Rehabilitation), which is not on this map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT06570148 unknown statusnot on this map

Towards the Development of a Digital Solution to Support the Exchange of Information in Paediatric Rehabilitation: an Exploratory Qualitative Study With Professionals, Decision-makers and Patients Concerned : ProKidChildRehab

TypeobservationalSponsorUniversity Hospital, BrestRan2024 to 2026Enrolled60ConditionsChildren, Disability Physical, Disabilities Multiple, Disability, DevelopmentalArmssemi-directed interview or focus group
3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Marietta KersaléPaediatric Physical Medicine and Rehabilitation Department, CHU Brest, Brest, France.ORCID https://orcid.org/0009-0007-7018-4422
Quan Nha HongFaculty of Medicine, University of Montreal, Montreal, QC, Canada.ORCID https://orcid.org/0000-0002-2576-5750
Thomas RichardLaboratory of Medical Information Processing (LaTIM), INSERM UMR 1101, Brest, France.ORCID https://orcid.org/0009-0009-6680-1875
Christèle Kandalaft CabrolLaboratory of Medical Information Processing (LaTIM), INSERM UMR 1101, Brest, France.ORCID https://orcid.org/0009-0003-6862-4741
Audrey GuevelLaboratory of Medical Information Processing (LaTIM), INSERM UMR 1101, Brest, France.ORCID https://orcid.org/0009-0005-6556-2201
Emmanuelle FilyPaediatric Physical Medicine and Rehabilitation Department, Fondation Ildys, Brest, France.ORCID https://orcid.org/0009-0005-1274-9785
Gaëlle TisserandFaculty of Medicine and Health Sciences, University of Brest (UBO), Brest, France.ORCID https://orcid.org/0009-0003-9795-2330
Sylvain BrochardPaediatric Physical Medicine and Rehabilitation Department, CHU Brest, Brest, France.ORCID https://orcid.org/0000-0002-4950-1696
Marie-Pascale PomeyFaculty of Medicine, University of Montreal, Montreal, QC, Canada.ORCID https://orcid.org/0000-0001-5180-8139
Christelle PonsPaediatric Physical Medicine and Rehabilitation Department, CHU Brest, Brest, France.ORCID https://orcid.org/0000-0003-3924-6035

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundProviding integrated care is essential in pediatric rehabilitation, as children with disabilities often navigate complex, long-term pathways involving multiple professionals across health, education, and community services. Strengthening communication and partnership among children, families, and professionals is key to supporting meaningful participation in daily life. Shared digital health portals offer a promising solution to support integrated care, yet their potential remains underexplored in this context.

objectiveThis study explores the perspectives of multidisciplinary professionals involved in pediatric rehabilitation on shared patient portals designed to support integrated care for children with disabilities.

methodsAn interpretive descriptive qualitative study grounded in a constructivist epistemological position was conducted. Data were collected through semistructured online interviews with professionals purposively recruited using maximum variation sampling. All were involved in the rehabilitation pathways of children with motor, cognitive, or mental disabilities in France. Interview verbatim transcripts were analyzed using NVivo (version 14, Lumivero) by an interdisciplinary team of researchers, including parents and clinicians, using a thematic analysis approach. Theoretical saturation was reached.

resultsA total of 32 professionals, including clinicians, educators, social workers, and coaches working in hospitals, rehabilitation centers, outpatient clinics, or private practices, integrated health and social services, schools, nurseries, leisure associations, and social services, participated in this study. Four themes captured professionals' ambivalent perspectives on portals, addressing their perceived contributions to integrated care, anticipated barriers, practical strategies for implementation, and expectations regarding features: (1) ensuring continuity across health, education, and recreation services: navigating transparency, confidentiality, and inclusion; (2) enhancing family partnership while preserving professional autonomy and navigating engagement diversity; (3) involving children in patient portals: from children's empowerment to professionals' ethical responsibility; and (4) the contrast between concerns about additional workload and beliefs regarding efficiency. Participants suggested features such as shared calendars, secure messaging, and tools to share videos, rehabilitation goals, and track progress, alongside practical strategies to support real-world adoption.

conclusionsThis study highlights the perceived potential of shared patient portals to strengthen partnerships and fruitful collaboration among children, families, and professionals involved in the pediatric rehabilitation pathways, including education and recreation providers. Professionals proposed concrete features to support integrated care, informing the development of tools likely to improve the quality of rehabilitation services. Future studies should explore the perspectives of children, families, and decision makers to support effective implementation and evaluate the real-world impact.

trial registrationClinicalTrials.gov NCT06570148; https://clinicaltrials.gov/study/NCT06570148.

Indexed as

children with disabilitieseducationintegrated carepatient and family-centered carepatient and family partnershippediatric rehabilitationqualitative studyrecreation and communityshared health patient portalsocial

Identifiers

PMID41072921
PMCPMC12552821

What OpenQuestion holds

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LicenceCC BY
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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.