Evidence map›Paper›PMID 41071505›Full record

ArticleAIDS and behavior2026

"I Felt Somewhat Cheated and Deceived When that Roadblock Came": PrEP-Related Medical Mistrust, Distrust, and Misinformation Among Black Sexual Minority Men.

Kay A Simon, Samantha E Lawrence, Alyssa N Clark, Veronica Hanna-Walker, Greyson Arnold, Redd Driver, Jolaade Kalinowski, Ryan J Watson, Lisa A Eaton

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in AIDS and behavior, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Kay A SimonDepartment of Family Social Science, University of Minnesota, 1985 Buford Ave, St. Paul, MN, 55108, USA. simo1253@umn.edu.ORCID http://orcid.org/0000-0003-1645-2231
Samantha E LawrenceSchool of Social Work, University of Connecticut, Hartford, CT, USA.ORCID http://orcid.org/0000-0001-7436-6732
Alyssa N ClarkDepartment of Psychology, College of Wooster, Wooster, OH, United States.ORCID http://orcid.org/0000-0002-7864-8697
Veronica Hanna-WalkerSchool of Social Work, University of Connecticut, Hartford, CT, USA.ORCID http://orcid.org/0000-0003-3486-3990
Greyson ArnoldDepartment of Family Social Science, University of Minnesota, 1985 Buford Ave, St. Paul, MN, 55108, USA.ORCID http://orcid.org/0009-0007-5720-5444
Redd DriverHIV Center for Clinical and Behavioral Studies, New York State Psychiatric Institute and Columbia University, New York, NY, USA.ORCID http://orcid.org/0000-0002-7699-6321
Jolaade KalinowskiDepartment of Human Development and Family Sciences, University of Connecticut, Storrs, CT, USA.ORCID http://orcid.org/0000-0003-1637-0455
Ryan J WatsonDepartment of Human Development and Family Sciences, University of Connecticut, Storrs, CT, USA.ORCID http://orcid.org/0000-0001-7824-7714
Lisa A EatonDepartment of Human Development and Family Sciences, University of Connecticut, Storrs, CT, USA.

Funding

Foundation for the National Institutes of Health K01DA047918Foundation for the National Institutes of Health R01DA053168Foundation for the National Institutes of Health R01MH109409Foundation for the National Institutes of Health R34MH115798Foundation for the National Institutes of Health T32MH019139Foundation for the National Institutes of Health T32MH074387
6 · The paper itself

Abstract

Substantial advances have been made in medical technologies to reduce HIV transmission in previous decades. However, disparities regarding HIV transmission continue to persist, with Black sexual minority men (BSMM) disproportionately impacted. These disparities are driven by several different economic and socio-cultural barriers, some of which include the ongoing mistrust or distrust of medicine and science among communities of color. Furthermore, the spread of misinformation has also substantially hampered the ability to effectively communicate the importance and efficacy of a major tool that can be used to reduce HIV transmission: pre-exposure prophylaxis (PrEP). Therefore, the goal of this study was to provide an understanding of BSMM's experiences with and trust in medicine and practitioners, more broadly. The current study utilized interview data to qualitatively analyze the experiences of 32 BSMM in the United States. A thematic analysis was conducted, and we developed three different overarching themes to categorize different aspects of (a) medical mistrust, (b) medical distrust, and (c) misinformation. Results suggest that mistrust, distrust, and the spread of misinformation pertaining to medical institutions, medications (e.g., PrEP, antiretrovirals), and practitioners are present and appear to influence perceptions of HIV/AIDS and interest, access, or uptake and use of PrEP. Findings can inform ways to effectively rebuild relationships with medical providers and communicate information about PrEP uptake and HIV/AIDS by addressing medical mistrust and misinformation.

Indexed as

Black or African AmericanCommunicationHIV InfectionsHomosexuality, MalePre-Exposure ProphylaxisSexual and Gender MinoritiesTrustAdultDeceptionHealth Knowledge, Attitudes, PracticeHumansInterviews as TopicMaleMiddle AgedQualitative ResearchUnited StatesBlack sexual minority menMedical distrustMedical mistrustMisinformationPrEP

Identifiers

PMID41071505
PMCPMC12929277

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.