ArticleJournal of autism and developmental disorders2025
A Qualitative Study of the Diagnostic Experiences of Young Autistic Adults in China.
Article in Journal of autism and developmental disorders, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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Abstract
purposeResearch on the experiences of autistic adults in China is extremely limited. This study explored the diagnostic experiences of young autistic adults from the Chinese mainland, focusing on barriers to timely diagnosis and post-diagnostic reactions within China's sociocultural context.
methodEighteen autistic adults (9 males, 9 females) aged 20-30 years completed semi-structured interviews consisting of open-ended questions regarding their diagnostic experiences. Interview data were analyzed using thematic analysis.
resultsThree major themes were generated from the interview data: (1) barriers to recognizing autism; (2) navigating a challenging path to diagnosis; and (3) reconstructing self and relationships after diagnosis. Participants encountered diagnostic barriers across familial, educational, cultural, and systemic domains. Post-diagnosis, many participants experienced relief and enhanced self-understanding, though reactions from parents varied, and workplace disclosure posed challenges.
conclusionThis study provides valuable insights into the diagnostic challenges and post-diagnosis experiences of Chinese autistic adults. The findings underscore the need for improved diagnostic services and greater public awareness of autism in the Chinese mainland.
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