Evidence map›Paper›PMID 41070002›Full record

ReviewBlood vessels, thrombosis & hemostasis2025

The Bleeding Disorders Research Collaborative.

Leonard A Valentino, Maria E Santaella, Michelle L Witkop, Raymond W Stanhope, Sammie Valadez, Samantha A Carlson, Halli Benasutti, Donna DiMichele, Michael Recht

Abstract readReview
In one paragraph

Review in Blood vessels, thrombosis & hemostasis, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Leonard A ValentinoDepartment of Pediatrics, Hemophilia and Thrombophilia Center, Rush University Medical Center, Chicago, IL.
Maria E SantaellaResearch Department, National Bleeding Disorders Foundation, New York, NY.
Michelle L WitkopResearch Department, National Bleeding Disorders Foundation, New York, NY.
Raymond W StanhopeLone Star Bleeding Disorders Foundation, Sugar Land, TX.
Sammie ValadezBleeding Disorders Alliance Illinois, Peru, IL.
Samantha A CarlsonResearch Department, National Bleeding Disorders Foundation, New York, NY.
Halli BenasuttiResearch Department, National Bleeding Disorders Foundation, New York, NY.
Donna DiMicheleDonna DiMichele Consulting, LLC, Washington, DC.
Michael RechtResearch Department, National Bleeding Disorders Foundation, New York, NY.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

The Bleeding Disorders Research Collaborative (BDRC) aims to advance an accessible standard of care and quality of life for all people living with inheritable bleeding disorders. This goal will be achieved through collaborative and meaningful scientific inquiry, coordinated by an efficient research infrastructure, and undertaken by a diverse, capacitated workforce in partnership with an engaged community. The BDRC is supported by facilitative research policy and grounded in the principles of health equity, diversity, inclusion, accessibility, and belonging, striving for dignity, safety, well-being, and opportunities, leading to health justice. Importantly, the initiative is fully informed by lived experience experts, people affected by inheritable bleeding disorders, who are key members in the research development, implementation, and dissemination team.

Identifiers

PMID41070002
PMCPMC12506547

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.