Evidence map›Paper›PMID 41064588›Full record

ArticleInternational journal of population data science2025

Improving opportunities for data linkage within Children Looked After administrative records in Wales.

Grace A Bailey, Alex Lee, Saira Ahmed, Ieuan Scanlon, Laura E Cowley, Amy Stuart, Ian Farr, Caroline Brooks, Laura North, Lucy J Griffiths

Abstract read
In one paragraph

Article in International journal of population data science, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Grace A BaileyPopulation Data Science, Swansea University Medical School, Swansea, SA2 8PP, UK.
Alex LeePopulation Data Science, Swansea University Medical School, Swansea, SA2 8PP, UK.
Saira AhmedPopulation Data Science, Swansea University Medical School, Swansea, SA2 8PP, UK.
Ieuan ScanlonPopulation Data Science, Swansea University Medical School, Swansea, SA2 8PP, UK.
Laura E CowleyPopulation Data Science, Swansea University Medical School, Swansea, SA2 8PP, UK.
Amy StuartPopulation Data Science, Swansea University Medical School, Swansea, SA2 8PP, UK.
Ian FarrPopulation Data Science, Swansea University Medical School, Swansea, SA2 8PP, UK.
Caroline BrooksPopulation Data Science, Swansea University Medical School, Swansea, SA2 8PP, UK.
Laura NorthPopulation Data Science, Swansea University Medical School, Swansea, SA2 8PP, UK.
Lucy J GriffithsPopulation Data Science, Swansea University Medical School, Swansea, SA2 8PP, UK.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Introduction: Linkage of population-based administrative data is a powerful tool for studying important public issues. To overcome confidentiality and disclosure issues, records are de-identified and allocated a unique identifier. Within the Secure Anonymised Information Linkage (SAIL) Databank, these are known as Anonymised Linking Fields (ALFs). Assignment of an ALF enables linkage of individuals across multiple routinely collected datasets. Within the Children Looked After (CLA) Wales dataset, only 37% of the children have an ALF, limiting linkage to other datasets and, as a result, potential research. There are also other known data issues, including discrepancies with the week of births, duplicate identifiers and year-on-year changes in identifiers. Objectives To improve accuracy and availability of the ALFs in the CLA dataset, and overall research quality. Methods: Using several datasets within the SAIL Databank, we developed a six-step CLA matching algorithm to improve the ALF matching rate and correct for data errors. To assess the performance of our algorithm, we benchmarked against routine ALFs already identified via the algorithm currently used by SAIL. Results: Our algorithm increased ALF matching by 25%, assigning 61% of individuals an ALF. Inconsistent weeks of birth, and incorrect and duplicate identifiers were resolved. When benchmarking against the current ALF-assigning algorithm used by SAIL, our algorithm had an overall sensitivity of 90%. Conclusion: We have developed an algorithm which demonstrates comparable ALF matching performance to the current algorithm used within SAIL, and which greatly improves the ALF matching in the CLA dataset. This algorithm may help to overcome potential bias due to missing data, and increases the potential for linkage to other datasets. Further development and refinement could result in the algorithm being applied to other datasets in SAIL.

Indexed as

Information Storage and RetrievalMedical Record LinkageAlgorithmsChildData AccuracyDatabases, FactualHumansWalesadministrative data linkagechildren looked afterSAIL Databank

Identifiers

PMID41064588
PMCPMC12502067

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.