Evidence map›Paper›PMID 41064416›Full record

ArticleJournal of patient experience2025

The Need for Health Systems to Engage With and Support Youth who are Caregivers-A Lived Experience Perspective From Young Carers.

Alexandre Grant, Nicholas Goberdhan, Kristie Mar, Amanda Ramkishun, Samiha Rahman, Tyler Redublo, Isabelle Caven, Karen Okrainec

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of patient experience, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Alexandre GrantIndependent Advisor, University Health Network, Toronto, ON, Canada.
Nicholas GoberdhanIndependent Advisor, University Health Network, Toronto, ON, Canada.
Kristie MarIndependent Advisor, University Health Network, Toronto, ON, Canada.
Amanda RamkishunIndependent Advisor, University Health Network, Toronto, ON, Canada.
Samiha RahmanIndependent Advisor, University Health Network, Toronto, ON, Canada.
Tyler RedubloIndependent Advisor, University Health Network, Toronto, ON, Canada.ORCID https://orcid.org/0009-0008-0187-2253
Isabelle CavenToronto General Hospital Research Institute, University Health Network, Toronto, ON, Canada.ORCID https://orcid.org/0009-0004-1834-284X
Karen OkrainecToronto General Hospital Research Institute, University Health Network, Toronto, ON, Canada.ORCID https://orcid.org/0000-0003-0754-1830

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Caregivers under the age of 25, or young carers, lack significant recognition and support across sectors of education, employment, and healthcare. As young carer advisors on a prior research project exploring Canadian healthcare providers' awareness of young carers in their clinical practice, we were a part of an experience-based co-design process to create a toolkit for healthcare providers to better recognize, engage with, and support young carers in clinical practice. In the following Patient Perspective, we highlight our individual experiences of interacting with the healthcare system as young carers and propose three key recommendations for healthcare systems to better value and integrate young carers. These include the need to recognize that young people can be carers, the importance of support and resources for carers and care recipients alike, and the importance of accessible and reliable primary care.

Indexed as

access to carecaregivingclinician–patient relationshiphealthcare planning/policypatient perspectives/narrativesyoung carers

Identifiers

PMID41064416
PMCPMC12501433

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.