Evidence map›Paper›PMID 41055575›Full record

ArticleJournal of evaluation in clinical practice2025

Engaging Adolescents With Chronic Illness in Patient-Education: The Adolescent's Perception.

Marie-Paule Morin, Aimun Qadeer Shah, Marie-Pascale Pomey, Claude Julie Bourque, Lawrence Grierson, Maria Mylopoulos, François Bowen

Abstract read
In one paragraph

Article in Journal of evaluation in clinical practice, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Marie-Paule MorinCHU Sainte-Justine, Université de Montreal, Montreal, Quebec, Canada.
Aimun Qadeer ShahDepartment of Family Medicine, McMaster University, Hamilton, Ontario, Canada.ORCID 0000-0002-0784-0577
Marie-Pascale PomeyDepartment of Management, Evaluation and Health Policy, Université de Montreal, Montreal, Quebec, Canada.
Claude Julie BourqueDepartment of Family Medicine and Emergency Medicine, Université de Montreal, Montreal, Quebec, Canada.
Lawrence GriersonDepartment of Family Medicine, McMaster University, Hamilton, Ontario, Canada.
Maria MylopoulosThe Wilson Centre for Research in Education, University of Toronto, Toronto, Ontario, Canada.ORCID 0000-0003-0012-5375
François BowenDepartement of Psychopedagogy and Andragogy, Université de Montreal, Montreal, Quebec, Canada.

Funding

This study was supported by a Physicians Services Incorporated (PSI) Foundation Grant (Award #11-39).
6 · The paper itself

Abstract

rationaleMusculoskeletal (MSK) conditions are a leading cause of global disability, yet MSK physical examination remains a well-documented gap in medical education. Learners frequently report low confidence in performing these exams. Medical education programmes have addressed this by engaging adult patient educators with lived experience, an approach that has been shown to improve clinical skills. However, little is known about engaging adolescents as patient educators for the MSK exam, despite arthritis being a common chronic condition in this age group. As adolescents are at a unique developmental stage, their perspectives can help medical learners develop age-appropriate, patient-centred care. Exploring how adolescents themselves perceive this role is essential to designing effective educational programmes. This study represents an important first step in informing the development of a future patient-educator programme involving adolescents with juvenile idiopathic arthritis (JIA). AIMS AND

objectivesThis study explored the perceptions of adolescents (13-18 years) with JIA about their potential involvement as patient-educators of the MSK exam.

methodWe conducted 19 semi-structured interviews at two Canadian paediatric centres and analysed transcripts using thematic content analysis.

resultsResults showed that adolescents were generally enthusiastic about patient education and recognised the value of lived experience in training medical learners.

conclusionUnderstanding adolescents' perceptions is key to developing future medical education programmes that meaningfully integrate their experiences.

Indexed as

Arthritis, JuvenilePatient Education as TopicAdolescentCanadaChronic DiseaseFemaleHumansInterviews as TopicMalePatient-Centered CarePhysical ExaminationQualitative Researchadolescentsjuvenile arthritismedical educationpatient‐educatorsPatient engagement

Identifiers

PMID41055575
PMCPMC12503082

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LicenceCC BY-NC
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.