Evidence map›Paper›PMID 41045608›Full record

ArticleResearch in developmental disabilities2025

Defining and measuring emotional well-being in intellectual and developmental disabilities: A scoping review.

Alecia Mercier, Jessica Koslouski, Sandra Chafouleas, Sophie Hall, Caroline G Richter

Abstract readScoping Review
PubMed Full text at PMC Publisher
In one paragraph

Article in Research in developmental disabilities, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
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1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Alecia MercierDepartment of Psychology, University of Alabama at Birmingham, USA.
Jessica KoslouskiDepartment of Educational Psychology, University of Connecticut, USA.
Sandra ChafouleasDepartment of Educational Psychology, University of Connecticut, USA.
Sophie HallDepartment of Educational Psychology, University of Connecticut, USA.
Caroline G RichterDepartment of Psychology, University of Alabama at Birmingham, USA. Electronic address: carolinerichter@uab.edu.

Funding

Network to Advance the Study of Mechanisms Underlying Mind-Body Interventions and Measurement of Emotional WellbeingU24AT011281 · NCCIH · UNIVERSITY OF CONNECTICUT STORRS · PI CHAFOULEAS, SANDRA M, HOEFT, FUMIKO · 2021 to 2024
$2.4M
NCCIH NIH HHS U24 AT011281
6 · The paper itself

Abstract

objectiveThis review aimed to compile and report on existing emotional well-being (EWB) subjective report measures that have been developed, adapted, or validated on individuals with intellectual and developmental disabilities (IDD).

methodFollowing PRISMA guidelines, this review searched three databases using search terms related to EWB, IDD, and measurement. Two independent reviewers screened titles and abstracts, then reviewed the full texts to include articles that used an EWB-related measure, had an IDD sample, and reported psychometric evidence (% agreement = 97.41, k = 91.92). For each included article, two coders extracted data, and an item analysis was performed to identify EWB and non-EWB items included in each located measure.

resultsThis review identified 33 articles and 20 subjective report measures that were developed, adapted, or validated for individuals with IDD. Most existing measures focus on quality of life rather than treating EWB as a distinct, stand-alone construct, and include only a few EWB items. The included measures were mostly validated on adults and older adults with mild to moderate ID and show varying psychometric evidence across and within measures.

conclusionsThis review clarifies the current state of EWB measurement in individuals with IDD and provides an organized summary of existing EWB measures. These findings can guide the continued development of EWB research in the IDD population by identifying knowledge gaps and pointing to future directions. Findings also help inform the selection of subjective report measures for assessing EWB in individuals with IDD.

Indexed as

Developmental DisabilitiesEmotionsIntellectual DisabilityQuality of LifeHumansPsychometricsDisabilityEmotional well-beingMeasurementPsychological healthPsychometric evidenceQuality of lifeScoping review

Identifiers

PMID41045608
PMCPMC12558165

What OpenQuestion holds

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.