Evidence map›Paper›PMID 41041936›Full record

ArticleCommunity dentistry and oral epidemiology2026

Mapping Dental Care for Children and Adolescents With Rare Diseases: A Brazilian Multicentre Study.

Heloisa Vieira Prado, Rayssa Maria Soalheiro de Souza, Gabriella Guerra Freire Gabrich Fonseca, Kamila Rodrigues Junqueira Carvalho, Anna Vitória Mendes Viana Silva, Iasmin Fonseca Tolentino Mascarenhas, Beatriz Rezende Bergo, Hanna Larissa Barbosa Soares, Bárbara Mendes de Jesus, Layanne Ribeiro Ferreira E Sobral and 12 more

Abstract readMulticenter Study
In one paragraph

Article in Community dentistry and oral epidemiology, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

22 authors.

Heloisa Vieira PradoDepartment of Oral Surgery, Pathology and Clinical Dentistry, School of Dentistry, Universidade Federal de Minas Gerais, Belo Horizonte, Brazil.ORCID 0000-0002-9061-5644
Rayssa Maria Soalheiro de SouzaMultiprofessional Integrated Residency in Health, Universidade Federal de Minas Gerais, Belo Horizonte, Brazil.ORCID 0009-0006-1090-2165
Gabriella Guerra Freire Gabrich FonsecaMultiprofessional Integrated Residency in Health, Universidade Federal de Minas Gerais, Belo Horizonte, Brazil.ORCID 0009-0000-6661-7378
Kamila Rodrigues Junqueira CarvalhoDepartment of Child and Adolescent Oral Health, School of Dentistry, Universidade Federal de Minas Gerais, Belo Horizonte, Brazil.ORCID 0000-0003-3144-0570
Anna Vitória Mendes Viana SilvaDepartment of Child and Adolescent Oral Health, School of Dentistry, Universidade Federal de Minas Gerais, Belo Horizonte, Brazil.ORCID 0000-0002-1867-2126
Iasmin Fonseca Tolentino MascarenhasDepartment of Oral Surgery, Pathology and Clinical Dentistry, School of Dentistry, Universidade Federal de Minas Gerais, Belo Horizonte, Brazil.ORCID 0009-0004-3941-3248
Beatriz Rezende BergoDepartment of Restorative Dentistry, School of Dentistry, Universidade Federal de Minas Gerais, Belo Horizonte, Brazil.ORCID 0000-0002-7030-3440
Hanna Larissa Barbosa SoaresDepartment of Oral Surgery, Pathology and Clinical Dentistry, School of Dentistry, Universidade Federal de Minas Gerais, Belo Horizonte, Brazil.ORCID 0009-0008-0807-6567
Bárbara Mendes de JesusOral Medicine and Oral Pathology, School of Dentistry, Universidade Estadual de Montes Claros, Montes Claros, Brazil.ORCID 0009-0006-6219-5394
Layanne Ribeiro Ferreira E SobralOral Medicine and Oral Pathology, School of Dentistry, Universidade Estadual de Montes Claros, Montes Claros, Brazil.ORCID 0009-0005-6709-2485
Kélisson Duarte ReisPostgraduate Program in Dental Sciences, School of Dentistry, Universidade Federal de Alfenas, Alfenas, Brazil.ORCID 0009-0006-9288-8458
Késia Lara Dos Santos MarquesDepartment of Pediatric Dentistry, School of Dentistry, Universidade Federal de Uberlândia, Uberlândia, Brazil.ORCID 0000-0001-5565-3234
Fabiana Sodré de OliveiraDepartment of Pediatric Dentistry, School of Dentistry, Universidade Federal de Uberlândia, Uberlândia, Brazil.ORCID 0000-0002-3621-0216
Daniella Reis Barbosa MartelliPostgraduate Program in Primary Care/Health Sciences, Universidade Estadual de Montes Claros, Montes Claros, Brazil.ORCID 0000-0002-3979-7497
José Alcides Almeida de ArrudaDepartment of Oral Surgery, Pathology and Clinical Dentistry, School of Dentistry, Universidade Federal de Minas Gerais, Belo Horizonte, Brazil.ORCID 0000-0002-6599-3950
Benjamin P J FournierReference Center for Dental Rare Diseases (O-Rares), Rothschild Hospital, Paris, France.ORCID 0000-0003-4383-7524
Denise Vieira TravassosMultiprofessional Integrated Residency in Health, Universidade Federal de Minas Gerais, Belo Horizonte, Brazil.ORCID 0000-0003-2084-9557
Soraia MacariDepartment of Restorative Dentistry, School of Dentistry, Universidade Federal de Minas Gerais, Belo Horizonte, Brazil.ORCID 0000-0001-7643-6589
Célia Regina Moreira LanzaDepartment of Oral Surgery, Pathology and Clinical Dentistry, School of Dentistry, Universidade Federal de Minas Gerais, Belo Horizonte, Brazil.ORCID 0000-0001-5893-2597
Ana Cristina Borges-OliveiraDepartment of Social and Preventive Dentistry, School of Dentistry, Universidade Federal de Minas Gerais, Belo Horizonte, Brazil.ORCID 0000-0003-3364-4024
Hercílio Martelli-JúniorOral Medicine and Oral Pathology, School of Dentistry, Universidade Estadual de Montes Claros, Montes Claros, Brazil.ORCID 0000-0001-9691-2802
Tarcília Aparecida SilvaDepartment of Oral Surgery, Pathology and Clinical Dentistry, School of Dentistry, Universidade Federal de Minas Gerais, Belo Horizonte, Brazil.ORCID 0000-0001-9623-7835

Funding

Conselho Nacional de Desenvolvimento Científico e TecnológicoCoordenação de Aperfeiçoamento de Pessoal de Nível SuperiorFundação Carlos Chagas Filho de Amparo à Pesquisa do Estado do Rio de JaneiroFundação de Amparo à Pesquisa do Estado de Minas Gerais
6 · The paper itself

Abstract

objectivesTo describe the landscape of dental care provided by specialised centres for children and adolescents with rare diseases (RDs) in the state of Minas Gerais, southeastern Brazil.

methodsA retrospective cross-sectional study was conducted involving individuals aged 0-18 years with a confirmed diagnosis of a RD who received care at five specialised dental centres. Data on the diagnosis, age at first dental appointment, frequency of annual visits and travel distance from home to treatment centre were analysed using descriptive and inferential statistics.

resultsA total of 1057 individuals with 244 different RDs were identified. Most were boys (54.9%). The average age at the first dental appointment was 8.52 years. Haematological diseases were the most prevalent (38.9%). The average travel distance for treatment was 99.1 km, with individuals from the Jequitinhonha region traveling the farthest (526.3 km). The average number of annual dental visits was 2.4. Patients with craniofacial syndromes accessed care earlier (average: 3.6 years) and had more frequent follow-up appointments (average: 4.8 visits/year). Significant regional disparities were found in age at first appointment (p < 0.001), travel distance (p < 0.001) and frequency of visits (p = 0.002).

conclusionsChildren and adolescents with RDs had delayed initiation of dental care, low follow-up rates and substantial travel burdens. The concentration of specialised centres in the state capital underscores the need for policy reforms to improve equitable access, particularly for patients in remote areas.

Indexed as

Dental Care for ChildrenRare DiseasesAdolescentBrazilChildChild, PreschoolCross-Sectional StudiesFemaleHealth Services AccessibilityHumansInfantInfant, NewbornMaleRetrospective Studiesdental assistancedental care for childrenoral healthorphan diseasespaediatricsrare diseases

Identifiers

PMID41041936
PMCPMC13001003

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.