Evidence map›Paper›PMID 41041460›Full record

ArticleDigital health

Empowering patients: A multimodal digital health technology survey of patients with neurogenerative disorders and immune-mediated inflammatory diseases.

Corina Maetzler, Johanna Graeber, Daniel Schmidtmann, Alexandra Prodan, Luisa Avedano, Claire Bale, Paul Howard, Andrea Pilotto, Jennifer Jiménez Ramos, Ralf Reilmann and 12 more

Abstract read
In one paragraph

Article in Digital health. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

22 authors.

Corina MaetzlerDepartment of Neurology, University Medical Centre Schleswig-Holstein, Campus Kiel and Kiel University, Kiel, Germany.ORCID https://orcid.org/0009-0007-2579-6219
Johanna GraeberInstitute of General Medicine, University Medical Centre Schleswig-Holstein, Kiel University, Kiel, Germany.
Daniel SchmidtmannEmpirica Gesellschaft für Kommunikations- und Technologieforschung mbH, Bonn, Germany.
Alexandra ProdanEmpirica Gesellschaft für Kommunikations- und Technologieforschung mbH, Bonn, Germany.
Luisa AvedanoEuropean Federation of Crohn's and Ulcerative Colitis Associations, Brussels, Belgium.
Claire BaleParkinson's UK, London, UK.
Paul HowardLupus UK, Romford, UK.
Andrea PilottoNeurology Unit, Department of Clinical and Experimental Sciences, University of Brescia and Department of Continuity of Care and Fraily, ASST Spedali Civili of Brescia, Brescia, Italy.
Jennifer Jiménez RamosAsociación Parkinson Madrid, Madrid, Spain.
Ralf ReilmannGeorge-Huntington-Institute, Munster, Germany.
Matthew W RocheCHDI Management/CHDI Foundation, Princeton, New Jersey, USA.ORCID https://orcid.org/0009-0004-9350-7499
Nikolay ManyakovJanssen Pharmaceutica NV, Beerse, Belgium.ORCID https://orcid.org/0000-0001-9037-1400
Dina De SousaAssociação Portuguesa dos Doentes de Huntington (APDH), Lisboa, Portugal.
Lori WarringJohnson & Johnson, New Brunswick, New Jersey, USA.
Hanna KaduszkiewiczInstitute of General Medicine, University Medical Centre Schleswig-Holstein, Kiel University, Kiel, Germany.
Sophia HinzDepartment of Internal Medicine I, University Medical Centre Schleswig-Holstein, Kiel University, Kiel, Germany.ORCID https://orcid.org/0009-0009-6321-603X
Siegfried HirczyMovement Disorder Clinic, University of Washington, Seattle, Washington, USA.
Roongroj BhidayasiriChulalongkorn Centre of Excellence for Parkinson's Disease & Related Disorders, Department of Medicine, Faculty of Medicine, Chulalongkorn University and King Chulalongkorn Memorial Hospital, Thai Red Cross Society, Bangkok, Thailand.ORCID https://orcid.org/0000-0002-6901-2064
Frédéric BaribaudBristol Myers Squibb Research & Early Development, Princeton, New Jersey, USA.
Wan-Fai NgDepartment of Health Promotion and Prevention, HRB Clinical Research Facility Cork, University College Cork, Cork, Ireland.
Walter MaetzlerDepartment of Neurology, University Medical Centre Schleswig-Holstein, Campus Kiel and Kiel University, Kiel, Germany.ORCID https://orcid.org/0000-0002-5945-4694
Kirsten EmmertDepartment of Neurology, University Medical Centre Schleswig-Holstein, Campus Kiel and Kiel University, Kiel, Germany.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Objective: In an era where digital devices become increasingly available, passive and active capturing of patient data during their everyday life becomes possible. However, it is still unclear to what extent people with chronic diseases are willing to use digital health technology (DHT) to assess study-relevant endpoints. The aim of the present study was therefore to determine such acceptance rates for clinical studies and which type of DHT patients prefer. Methods: A survey with 492 people with Parkinson's disease (64 ± 11 years, 41% female) and 75 people with an immune-mediated inflammatory disease (58 ± 15 years, 99% female) was conducted. Results: The vast majority of people (93%) were willing to use at least two devices simultaneously during a clinical study. Two-thirds indicated that they would use DHT for ≥6 days following a visit in the context of a study. The appearance of the device turned out to be important as the most popular devices were smartwatches, whereas more complex DHT, clearly recognisable as medical-grade were least popular. The effects of gender, age and disease could be detected, such as, for example, a tendency for men to be willing to use more devices simultaneously than women. Conclusion: Overall, our findings suggest a willingness among individuals with Parkinson's disease and immune-mediated inflammatory disease to engage in clinical studies involving DHT. It is also evident that elderly patients can be integrated into these studies provided that the participation demands are aligned with clinical imperatives and the devices are user friendly.

Indexed as

Acceptance ratesdevice preferencesimmune-mediated inflammatory diseaseParkinson's diseaseuser friendlinesswearable devices

Identifiers

PMID41041460
PMCPMC12484905

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.