"Changeons les Règles!" development and feasibility testing of an encounter decision aid for menstrual management in adolescents and young adults with developmental disabilities.

Dehlia Moussaoui, Victoria L Crofts, Anne-Chantal Héritier-Barras, Thomas Agoritsas, Arnaud Merglen, Michal Yaron

Abstract read

In one paragraph

Article in PEC innovation, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it

0cells of the map it votes in

1citing papers in PubMed

–field-weighted citation impact

1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

Translation, Adaptation, and Validation of the French Version of the Low Literacy Decisional Conflict Scale in Adolescents.MDM policy & practice
Article

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Dehlia MoussaouiDivision of General Pediatrics, Department of Pediatrics, Obstetrics and Gynecology, Geneva University Hospitals and Faculty of Medicine, University of Geneva, Geneva, Switzerland.

Victoria L CroftsDivision of Gynecology, Department of Pediatrics, Obstetrics and Gynecology, Geneva University Hospitals and Faculty of Medicine, University of Geneva, Geneva, Switzerland.

Anne-Chantal Héritier-BarrasProgramme Handicap, Medical and Quality Directorate, Geneva University Hospitals, Geneva, Switzerland.

Thomas AgoritsasDivision of General Internal Medicine, Department of Medicine, Geneva University Hospitals, Geneva, Switzerland.

Arnaud MerglenDivision of General Pediatrics, Department of Pediatrics, Obstetrics and Gynecology, Geneva University Hospitals and Faculty of Medicine, University of Geneva, Geneva, Switzerland.

Michal YaronDivision of Gynecology, Department of Pediatrics, Obstetrics and Gynecology, Geneva University Hospitals and Faculty of Medicine, University of Geneva, Geneva, Switzerland.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Objectives: To report the developing process and acceptability testing of a decision aid designed for adolescents and young adults with developmental disabilities, focusing on treatment options for menstrual management. Methods: We developed a paper-based encounter decision aid to support shared decision-making about treatment options for menstrual management for adolescents and young adults with developmental disabilities. This tool was designed to be both evidence-based and user-centered. We conducted a feasibility study to assess its acceptability. Results: The decision aid was used during consultations with 18 adolescents and young adults with developmental disabilities and their caregivers. Participants reported high levels of acceptability and found the tool helpful in facilitating decision-making. They particularly valued the ability to compare treatment options side by side. The tool also promoted meaningful conversations between patients and clinicians. Conclusions: The decision aid was well-accepted and successfully facilitated the discussion about menstrual management options between patients and clinicians. Further research is needed to evaluate its long-term impact on decision making outcomes and patient satisfaction. Innovation: This innovative tool may support shared decision-making for adolescents and young adults with developmental disabilities and their caregivers, and provide additional insight on how to engage individuals with developmental disabilities in healthcare decisions.

Indexed as

AdolescentsDecision aidDisabilityDysmenorrheaHeavy menstrual bleedingMenstrual managementShared decision making

Identifiers

PMID41036317

DOI10.1016/j.pecinn.2025.100430

PMCPMC12482337

What OpenQuestion holds

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LicenceCC BY

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.