SynthesisHand (New York, N.Y.)2026
Choosing the Most Appropriate Patient-Reported Outcome Measures for Hand Function: A Guide for Pediatric Hand Surgeons.
Synthesis in Hand (New York, N.Y.), 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Authors and funding
8 authors.
Funding
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Abstract
Consensus is lacking on a patient-reported outcome measure (PROM) for pediatric hand surgery; many studies use unvalidated ad-hoc surveys. To guide selection, this systematic review searched PubMed, Embase, CINAHL, and Scopus for studies evaluating hand-function-focused PROMs among pediatric patients. According to the Preferred Reporting Items for Systematic Reviews and Meta-Analyses, reviewers independently screened studies, extracted data, assessed quality, and rated psychometrics using the COnsensus-based Standards for selection of health Measurement INstruments. Content analyses used the Occupational Therapy Practice Framework, hand therapist expertise, and readability indices. Thirty-three reports on 9 PROMs were included. Existing validation covers few pediatric hand conditions, notably excluding hand trauma and nearly all congenital differences. The Upper-Extremity Cerebral Palsy Profile of Health and Function Computerized Adaptive Test (UE-CP-PRO) and ABILHAND-Kids are the strongest candidates for generating a gold-standard PROM. Both have good evidence of responsiveness to surgical outcomes. With the highest-quality validity evidence for the broadest age range, the UE-CP-PRO covers all hand function categories and relevant occupational domains; ABILHAND-Kids covers nearly all. Both failed the American Medical Association's readability standard. We provisionally recommend the UE-CP-PRO or ABILHAND-Kids for pediatric hand surgery outcomes. We encourage revising these measures and/or developing a more comprehensive PROM, incorporating adaptive condition-specific content and prioritizing readability to support child-reporting.
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