Evidence map›Paper›PMID 41032255›Full record

ArticleThe Gerontologist2025

Advancing inclusive brain health and dementia care for people with intellectual and developmental disabilities: a public health framework.

Beth Marks, Jasmina Sisirak, Matthew P Janicki, Kathryn P Service, Karen Watchman

Abstract read
In one paragraph

Article in The Gerontologist, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Beth MarksDepartment of Disability and Human Development, University of Illinois Chicago, Chicago, Illinois, United States.ORCID 0000-0002-8243-5643
Jasmina SisirakDepartment of Disability and Human Development, University of Illinois Chicago, Chicago, Illinois, United States.ORCID 0000-0002-3389-5651
Matthew P JanickiDepartment of Disability and Human Development, University of Illinois Chicago, Chicago, Illinois, United States.ORCID 0000-0003-1053-1748
Kathryn P ServiceNational Task Group on Intellectual Disabilities and Dementia Practices, Rockport, Maine, United States.
Karen WatchmanFaculty of Health Sciences and Sport, University of Stirling, Scotland, UK.ORCID 0000-0003-0000-3589

Funding

CDC HHSNCCDPHP CDC HHSPeople with Intellectual and Developmental Disabilities Healthy Brain Initiative #1 NU58DP006782-01-
6 · The paper itself

Abstract

Adults with intellectual and developmental disabilities (IDD) face disproportionately high rates of chronic conditions, including an elevated risk for dementia. Yet access to appropriate brain health promotion and dementia care remains limited due to stigma, underdiagnosis, misdiagnosis, and systemic barriers. This article presents the Healthy Brain Initiative for People with Intellectual and Developmental Disabilities (HBI-PwIDD), which aims to (1) raise awareness of brain health and support health-promoting approaches for people with IDD experiencing Alzheimer's disease and related dementias; (2) build interprofessional partnerships to develop an inclusive, competent workforce; and (3) strengthen engagement of people with IDD and their supporters in accessing quality healthcare and improving outcomes. Applying a disability intersectionality lens, we integrate brain health promotion with dementia-capable services, emphasizing the critical role of disability-inclusive public health planning. We highlight person-centered approaches grounded in legal and human rights principles that provide access to brain health care and community-based supports. Finally, we discuss how tailored public health messaging and evidence-based workforce strategies can advance national and state brain health and dementia plans and improve equity in care for individuals with IDD. This paper illustrates how integrating disability-inclusive practices within public health systems can promote inclusive aging, improve dementia-related outcomes, and guide gerontologists in building inclusive, life course-oriented models of care.

Indexed as

DementiaDevelopmental DisabilitiesHealth PromotionIntellectual DisabilityPublic HealthHealth Services AccessibilityHumansDementiaDevelopmental disabilityDisabilityHealth equityIntellectual disabilityStructural and social determinants of health

Identifiers

PMID41032255
PMCPMC12736998

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.