Evidence map›Paper›PMID 41019424›Full record

ArticleClinical practice in pediatric psychology2025

Coping and Meaning-Making Strategies Described by Parents of Children with Medical Complexity.

Julia B Tager, Ansley E Kenney, Paulina S Lim, Samantha A Everhart, Sarah Johaningsmeir, Kathryn A Balistreri, Amy Morgan-Tautges, K Jane Lee, Maura A Brophey, Matthew C Scanlon and 3 more

Abstract read
In one paragraph

Article in Clinical practice in pediatric psychology, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Trial
  2. Emotional impact, burnout, and isolation among primary family caregivers of children with medical complexity.Families, systems & health : the journal of collaborative family healthcare · 2025
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

Julia B TagerPsychology Department, University of Wisconsin-Milwaukee, Milwaukee, WI, USA.
Ansley E KenneyPsychology Department, University of Wisconsin-Milwaukee, Milwaukee, WI, USA.
Paulina S LimPsychology Department, University of Wisconsin-Milwaukee, Milwaukee, WI, USA.
Samantha A EverhartDepartment of Pediatrics, Medical College of Wisconsin, Milwaukee, WI, USA.
Sarah JohaningsmeirDepartment of Pediatrics, Medical College of Wisconsin, Milwaukee, WI, USA.
Kathryn A BalistreriPsychology Department, University of Wisconsin-Milwaukee, Milwaukee, WI, USA.
Amy Morgan-TautgesChildren's Wisconsin, Milwaukee, WI, USA.
K Jane LeeDepartment of Pediatrics, Medical College of Wisconsin, Milwaukee, WI, USA.
Maura A BropheyDepartment of Pediatrics, Medical College of Wisconsin, Milwaukee, WI, USA.
Matthew C ScanlonDepartment of Pediatrics, Medical College of Wisconsin, Milwaukee, WI, USA.
Charles B RothschildDepartment of Pediatrics, Medical College of Wisconsin, Milwaukee, WI, USA.
W Hobart DaviesPsychology Department, University of Wisconsin-Milwaukee, Milwaukee, WI, USA.
Jessica L SchnellDepartment of Pediatrics, Medical College of Wisconsin, Milwaukee, WI, USA.

Funding

Clinical and Translational Science AwardUL1TR001436 · NCATS · MEDICAL COLLEGE OF WISCONSIN · PI FREED, JULIE K · 2015 to 2025
$47.5M
NCATS NIH HHS UL1 TR001436
6 · The paper itself

Abstract

Objective: Parents of children with medical complexity (CMC) experience stressors related to caregiving, navigating the healthcare system, and managing their own well-being. There is a dearth of research examining parental coping strategies used in response to these challenges. Informed by the revised Transactional Model of Coping, the current study aimed to characterize coping among a sample of parents of CMC. Methods: Twenty parental caregivers of CMC served by the Complex Care Program at a large midwestern pediatric hospital participated in one-hour semi-structured qualitative interviews. Results: Participants described a breadth of ways of coping with challenges in their lives, including problem-focused and emotion-focused coping strategies. They also described a range of meaning-making strategies, represented by themes Conclusions: Parents of CMC described coping with their challenges in diverse ways, including using many meaning-making strategies. Future research should investigate coping strategies more systematically with representative samples to enable culturally informed intervention development to support parent and family well-being among those who care for CMC.

Indexed as

children with medical complexitymeaning-makingparent coping

Identifiers

PMID41019424
PMCPMC12463315

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.