Evidence map›Paper›PMID 41014287›Full record

ArticleHealth expectations : an international journal of public participation in health care and health policy2025

Institutional Abuse, Neglect and Harm in UK Community Mental Health Services: A Scoping Review of the Peer-Reviewed Evidence.

Bethan M Edwards, Alan Meudell, Ellen Thomas, Eva Broeckelmann, Eva Roberts, Mark Farmer, Naomi Ghafoor, Sarah Markham, Catherine A Robinson, Angela Sweeney and 2 more

Abstract readScoping Review
In one paragraph

Article in Health expectations : an international journal of public participation in health care and health policy, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Critically Exploring Self-Harm Through Lived Experience Perspectives: A Survivor-Controlled Integrative Review Employing Participatory Methodology.Health expectations : an international journal of public participation in health care and health policy · 2026
    Review
  2. Article
  3. Institutional Abuse, Neglect and Harm in UK Community Mental Health Services: A Scoping Review of the Peer-Reviewed Evidence.Health expectations : an international journal of public participation in health care and health policy · 2025
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Bethan M EdwardsService User Research Enterprise (SURE), The Institute of Psychiatry, Psychology and Neuroscience, King's College London, UK.ORCID 0000-0001-7413-056X
Alan MeudellIndependent Service User/Survivor Researcher, UK.
Ellen ThomasService User Research Enterprise (SURE), The Institute of Psychiatry, Psychology and Neuroscience, King's College London, UK.
Eva BroeckelmannService User Research Enterprise (SURE), The Institute of Psychiatry, Psychology and Neuroscience, King's College London, UK.
Eva RobertsService User Research Enterprise (SURE), The Institute of Psychiatry, Psychology and Neuroscience, King's College London, UK.
Mark FarmerService User Research Enterprise (SURE), The Institute of Psychiatry, Psychology and Neuroscience, King's College London, UK.
Naomi GhafoorService User Research Enterprise (SURE), The Institute of Psychiatry, Psychology and Neuroscience, King's College London, UK.
Sarah MarkhamDepartment of Biostatistics & Health Informatics, The Institute of Psychiatry, Psychology and Neuroscience, King's College London, UK.
Catherine A RobinsonSocial Care and Society, Faculty of Biology, Medicine and Health, The University of Manchester, UK.
Angela SweeneyService User Research Enterprise (SURE), The Institute of Psychiatry, Psychology and Neuroscience, King's College London, UK.
Sarah CarrIndependent Service User/Survivor Researcher, UK.ORCID 0000-0002-5301-9456
Michael ClarkCare Policy & Evaluation Centre, London School of Economics & Political Science, London, UK.

Funding

This study was supported by an NIHR School for Social Care Research Career Development Award (2023) awarded to Bethan M. Edwards.
6 · The paper itself

Abstract

backgroundStatutory guidance relating to the prevention of institutional abuse, neglect and harm does not reflect the contemporary organisation of UK community mental health services. Historical associations with inpatient and residential settings have created a practice and conceptual gap despite lived experience testimony, inquiries and media reports attesting to the phenomena in community mental health services.

aimTo describe the peer-reviewed evidence on the phenomena of institutional abuse and neglect associated with harm in UK community mental health services for adults of working age.

methodsWe searched nine indexed databases for primary and secondary research (any methodology), theoretical papers and commentaries published between 2000 and 2025. We extracted and charted papers' substantive characteristics and findings, and conducted a descriptive synthesis to identify the phenomena's characteristics and potential causal factors.

findingsTwenty-two papers met inclusion criteria, consisting of primary research utilising qualitative or observational methods (n = 12), secondary research (n = 6), lived experience narratives (n = 3) and a community consultation (n = 1). Institutional neglect was the principal phenomenon described, with gaps and inadequacies in accessing institutional provisions a primary mechanism. Associated harms included suicide, homicide and psychological harms. People diagnosed with a personality disorder, labelled 'hard to engage' and who self-harm were amongst the population affected. Inter-related potential causal factors spanned national, institutional and individual levels, with resources a primary factor.

conclusionsOur scoping review advances conceptual knowledge about the characteristics and potential causal factors of institutional abuse, neglect and harm in UK community mental health services. This provides a robust foundation for future research endeavours to inform safeguarding and patient safety policy and practice. PATIENT AND PUBLIC CONTRIBUTION: The review was conceptualised, led and conducted by lived experience researchers who are current and/or previous users of mental health services. A Lived Experience Advisory Group (LEAG) was involved in the review's synthesis, manuscript preparation and are review authors.

Indexed as

Community Mental Health ServicesHumansPeer ReviewUnited Kingdomabusecommunityharmmental healthneglectpatient safetysafeguarding

Identifiers

PMID41014287
PMCPMC12476028

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.