Evidence map›Paper›PMID 41013633›Full record

ArticleBMC nursing2025

What matters in end-of-life communication with nursing staff: an interview study among older people and their family caregivers.

Fran B A L Peerboom, Jolanda H H M Friesen-Storms, Jenny T van der Steen, Daisy J A Janssen, Judith M M Meijers

Abstract read
In one paragraph

Article in BMC nursing, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

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3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Fran B A L PeerboomZuyderland Medical Center, Dr. H. van der Hoffplein 1, Sittard-Geleen, 6162 BG, The Netherlands. f.peerboom@zuyderland.nl.
Jolanda H H M Friesen-StormsZuyderland Medical Center, Dr. H. van der Hoffplein 1, Sittard-Geleen, 6162 BG, The Netherlands.
Jenny T van der SteenDepartment of Public Health and Primary Care (PHEG), Leiden University Medical Center, Leiden, the Netherlands.
Daisy J A JanssenDepartment of Health Services Research, Care and Public Health Research Institute, Maastricht University, Duboisdomein 30, Maastricht, 6229 GT, The Netherlands.
Judith M M MeijersZuyderland Medical Center, Dr. H. van der Hoffplein 1, Sittard-Geleen, 6162 BG, The Netherlands.

Funding

ZonMw 10040022110005
6 · The paper itself

Abstract

backgroundEnd-of-life communication as part of advance care planning (ACP) aims to support older people to reflect on their values, needs, and wishes regarding the end of life. Previous studies have provided an understanding of the important aspects ("fundamentals") of end-of-life conversations with older people from the perspective of nursing staff. Developing further understanding of the experiences and needs of older people and their family caregivers will help identify gaps in communication, guide nursing staff in providing successful ACP, and ultimately enhance person-centered care. We aimed to explore the experiences of older people and their family caregivers in home, nursing home and hospital settings regarding the fundamentals of end-of-life communication as part of ACP by nursing staff.

methodsSemi-structured interviews were performed with older people and their family caregivers about their experiences, opinions, and preferences before, during, and after recent formal end-of-life conversations. Data were analyzed thematically.

resultsEight older people and four of their family caregivers participated in three dyadic and six individual interviews between June 2023 and May 2024. Overall, participants felt it was difficult to describe and evaluate their experiences with the end-of-life conversations because they initially had no specific expectations about end-of-life conversations and approached them with an open mind. Three overall themes were composed comprising 11 fundamentals of end-of-life communication: "Navigating conversational phases: probing and reflecting" (e.g., readiness), "Fostering recognition and relational safety: acknowledging the older person" (e.g., feeling at ease, feeling seen while nursing staff attune to the older person, feeling a human connection), and "Engaging with family caregivers: valuing their role and well-being" (e.g., considering their well-being).

conclusionOlder people and their family caregivers prioritize feeling comfortable in natural and humane end-of-life conversations. They want to be seen, heard, and acknowledged as individuals with backgrounds, values, and needs, not just as patients with a disease. Nursing staff should be aware of the expectations of an older person and family caregiver in end-of-life communication and adjust their approach accordingly. The results of this study can help in developing effective strategies to ensure that end-of-life communication is tailored to the unique needs of older people and their family caregivers, fostering an informed approach.

Indexed as

Advance care planningEnd-of-life communicationFamily caregiversInterview studyNursing staffOlder people

Identifiers

PMID41013633
PMCPMC12465498

What OpenQuestion holds

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.