Evidence map›Paper›PMID 41013250›Full record

ArticleBMC geriatrics2025

Proxy, nurse, and physician needs regarding advance care planning by proxy for aged care residents lacking decision making capacity: an exploratory study.

Laura Jones, Rachel Rutz Voumard, Florent Rhyner, Fiorella Figari Aguilar, Eve Rubli Truchard, Ralf J Jox

Abstract read
In one paragraph

Article in BMC geriatrics, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Laura JonesChair of Geriatric Palliative Care, Lausanne University Hospital and University of Lausanne, Nestle building, Ave Pierre-Decker 11, Lausanne, 1011, Switzerland. Laura.jones@chuv.ch.
Rachel Rutz VoumardPalliative and Supportive Care service, Lausanne University Hospital and University of Lausanne, Lausanne, Switzerland.
Florent RhynerChair of Geriatric Palliative Care, Lausanne University Hospital and University of Lausanne, Nestle building, Ave Pierre-Decker 11, Lausanne, 1011, Switzerland.
Fiorella Figari AguilarDepartment of Geriatrics, Rehabilitation and Palliative Care, Neuchâtel Hospital Network, Neuchâtel, Switzerland.
Eve Rubli TruchardChair of Geriatric Palliative Care, Lausanne University Hospital and University of Lausanne, Nestle building, Ave Pierre-Decker 11, Lausanne, 1011, Switzerland.
Ralf J JoxChair of Geriatric Palliative Care, Lausanne University Hospital and University of Lausanne, Nestle building, Ave Pierre-Decker 11, Lausanne, 1011, Switzerland.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundWorldwide, populations are ageing. Together with improved home care and limited places in residential aged care facilities (RACF), this leads to people being admitted to RACF at more advanced ages and in increasingly fragile states of health, often with cognitive impairment. Advance directive completion rates are low, so many people are admitted to RACFs without having formally stated their wishes for care. Guidelines for advance care planning (ACP) in nursing homes exist, however they focus primarily on residents who maintain decision-making capacity. Programs are needed for people lacking decision-making capacity. We aimed to investigate the essential elements needed for ACP by proxy programs (ACPbp) for RACF contexts.

methodsWe conducted a qualitative exploratory study into health care proxy, RACF nurse and physician needs for ACPbp programs. We conducted semi-structured interviews with 18 health care proxies of 16 RACF residents lacking decision-making capacity, 3 focus groups with 23 RACF nurses and 3 focus groups with 13 physicians working in 9 RACFs.

resultsHealth care proxies expressed the need for structured, accompanied communication about residents’ health state and potential future situations requiring decision-making. Nurses echoed this need, adding that they need specific training along with standardised processes and discussion guides for conducting ACPbp discussions, and standardised documentation. Physicians also evoked the need for standardised processes and documentation to ensure efficient transfers between facilities and comprehensive documents in case of medical emergency. Such documents should be as short as possible, but also provide space to describe the resident’s values, life history and presumed will. Specifically trained personnel and time allocated specifically to ACPbp are key for implementation.

conclusionsThis study underscores the need for ACPbp in RACFs, provides guidelines for such programs and identifies the specific aspects necessary for the development of ACPbp programs in this context.

Indexed as

Advance Care PlanningDecision MakingHomes for the AgedNursesNursing HomesPhysiciansProxyAgedAged, 80 and overFemaleHumansMaleNursing Home ResidentsAdvance care planningDecision making capacityDementiaExploratoryHealth care proxyQualitative

Identifiers

PMID41013250
PMCPMC12465167

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.