Evidence map›Paper›PMID 41007513›Full record

ArticleInternational journal of environmental research and public health2025

Getting To(wards) Know(ing) Together: An Innovative Collaborative Approach in Residential Care for People with (Severe) Intellectual Disabilities and Behaviour That Challenges.

Gustaaf F Bos, Vanessa C Olivier-Pijpers, Alistair R Niemeijer

Abstract read
In one paragraph

Article in International journal of environmental research and public health, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Gustaaf F BosDepartment of Care Ethics, University of Humanistic Studies, Postbus 797, 3500 AT Utrecht, The Netherlands.ORCID 0000-0003-4703-6900
Vanessa C Olivier-PijpersCare Organization Ipse de Bruggen, Postbus 7027, 2701 AA Zoetermeer, The Netherlands.
Alistair R NiemeijerDepartment of Care Ethics, University of Humanistic Studies, Postbus 797, 3500 AT Utrecht, The Netherlands.

Funding

Netherlands Organisation for Health Research and Development 639003301
6 · The paper itself

Abstract

People with moderate to severe intellectual disabilities (M/S ID) and behaviour that challenges are still almost exclusively encountered and understood within a highly specialized professional care system context. They are almost invisible in the societal mainstream, where a wider variety of perspectives on (everyday) manners, encounters, relationships and life applies. These (and other) exclusionary dynamics render everyday relations with residents with M/S ID whose behaviours challenge still largely dependent on the interpretative frameworks and actions of professionals. Professionals are trained and socialized within highly specialized professional care system contexts, despite a growing scientific and professional awareness that behaviour that challenges is a multifaceted and contextual phenomenon. In this paper, we report on a pioneering initiative (titled Project WAVE) which aimed to cultivate a fresh and comprehensive approach to behaviours that challenge within stagnant care practices. Our goal was to foster an innovative collaborative paradigm by facilitating an extensive and enduring exchange between "insiders"-professionals of specialized care system contexts-and "outsider-researchers"-individuals socialized through alternative avenues. We present our epistemological and methodological approach, the data collection process (a multiple case-informed community of practice), and the most important lessons learned.

Indexed as

Cooperative BehaviorIntellectual DisabilityResidential FacilitiesFemaleHumansMalechallenging behaviourcollaborative researchcommunity of practicecomplexityhighly specialized residential careinsider-outsiderintellectual disabilitiessocialisationstagnant care practices

Identifiers

PMID41007513
PMCPMC12469599

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.