ArticleHealth expectations : an international journal of public participation in health care and health policy2025
Dimensions of Social Capital for Supporting Informal Carers of Patients With Advanced Chronic Illness in the Community: A Concept Mapping Study.
Article in Health expectations : an international journal of public participation in health care and health policy, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
1 citing paper in PubMed.
- Care as a Central Concept: Dimensions, Inequalities and Challenges in Chronic Care in Contemporary Societies: A Narrative Review.Healthcare (Basel, Switzerland) · 2026Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
Abstract
introductionSocial capital, defined as social interactions that increase the productivity of a community, can help address the health needs of the community. Although evidence suggests that carers of patients with advanced chronic illnesses experience a high caregiving burden and require community support, the specific dimensions of social capital they need remain unclear.
methodsThis concept mapping study was conducted between April 2021 and July 2023. In total, 98 stakeholders, including 25 carers, 25 patients, 24 professionals and 24 community members, were recruited through purposive and snowball sampling. The research team initially conducted semi-structured interviews to brainstorm and collect important statements related to the study objectives. Subsequently, the participants were invited to sort and rate these statements. The responses from the rating and sorting tasks were analysed using multidimensional scaling and hierarchical cluster analysis. The importance ratings and demographic backgrounds were summarised with descriptive statistics.
resultsFive clusters emerged from the analysis: carers' attributes, carers' networks, carers and service providers, carers and the local community, and carers and society. Among these clusters, the participants deemed healthcare and social services the most important, followed by positive interactions with the care recipient, a sense of responsibility, and readiness to accept support. They also valued the support received from family members, friends, neighbours, other carers and reliable communication channels. In addition, inclusive public spaces and flexible working arrangements were considered valuable for providing community support to the carers of patients with chronic illnesses in the community.
conclusionDespite the many challenges faced by informal carers of patients with advanced chronic illnesses, social capital can be leveraged to address these issues. The dimensions of social capital identified in this study can serve as a framework for developing social care programmes and policies to support informal carers. PATIENT OR PUBLIC CONTRIBUTION: Patients, informal carers, professionals and community members involved in the care of patients with advanced chronic illnesses participated in this study.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.