Evidence map›Paper›PMID 40999447›Full record

ArticleBMC psychology2025

Validation of the Zarit burden interview for Polish caregivers of individuals with rare diseases: a multidimensional approach to assessing caregiver burden.

Dariusz Walkowiak, Piotr Jabkowski, Jan Domaradzki

Abstract readValidation Study
In one paragraph

Article in BMC psychology, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Dariusz WalkowiakDepartment of Organization and Management in Health Care, Poznan University of Medical Sciences, Poznan, Poland. dariuszwalkowiak@ump.edu.pl.ORCID http://orcid.org/0000-0001-8874-2401
Piotr JabkowskiFaculty of Sociology, Adam Mickiewicz University, Poznan, Poland.ORCID http://orcid.org/0000-0002-8650-9558
Jan DomaradzkiDepartment of Social Sciences and Humanities, Poznan University of Medical Sciences, Poznan, Poland.ORCID http://orcid.org/0000-0002-9710-832X

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThe study aimed to validate the Zarit Burden Interview (ZBI) in a sample of 942 caregivers of patients with rare diseases (RDs) in Poland.

methodsThe validation process included exploratory and confirmatory factor analyses, as well as an assessment of internal consistency and interpretability.

resultPrincipal Component Analysis was conducted to determine the underlying structure of the scale, identifying a three-factor solution: Personal Sacrifice, Emotional Strain, and Caregiver Guilt and Future Worries. This model was then tested using Confirmatory Factor Analysis, which demonstrated superior model fit compared to a unidimensional approach (CFI = 0.942, TLI = 0.931, SRMR = 0.052, RMSEA = 0.061). Reliability analysis showed strong internal consistency, with Cronbach's alpha values of 0.861 for Personal Sacrifice, 0.848 for Emotional Strain, and 0.722 for Caregiver Guilt and Future Worries. Additionally, weighted scores were introduced for better interpretability, and stratified comparisons by age and sex provided normative references.

conclusionsOverall, the results confirm that the three-factor model of the ZBI effectively captures caregiver burden and can serve as a reliable tool for assessing the impact of caregiving in diverse populations. The final section provides normative data for the three ZBI subscales among Polish caregivers of individuals with RDs Stratified by sex and age, these norms aid clinicians and researchers in contextualizing individual scores, identifying high-risk groups, and guiding targeted support efforts.

Indexed as

Caregiver BurdenCaregiversCost of IllnessInterview, PsychologicalRare DiseasesStress, PsychologicalAdolescentAdultAgedFactor Analysis, StatisticalFemaleHumansMaleMiddle AgedPolandPsychometricsCaregiver burdenCaregiversRare diseasesZarit burden interview

Identifiers

PMID40999447
PMCPMC12465876

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.