Evidence map›Paper›PMID 40997223›Full record

ArticleJournal of Alzheimer's disease : JAD2025

Recommended approaches to sharing individual research results in Alzheimer's disease research: A multidisciplinary expert Delphi consensus.

Valerie Rico, Megan Zelinsky, Paul J Ford, James Leverenz, Jagan A Pillai, Justin B Miller, Kathryn Martinez, Alan J Lerner, Babak Tousi, Liana G Apostolova and 30 more

Abstract readConsensus Statement
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of Alzheimer's disease : JAD, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Review
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

40 authors.

Valerie RicoCleveland Clinic Neurological Institute, Neuroethics Program, Cleveland, OH, USA.ORCID 0009-0001-2820-000X
Megan ZelinskyCleveland Clinic Neurological Institute, Neuroethics Program, Cleveland, OH, USA.
Paul J FordCleveland Clinic Neurological Institute, Neuroethics Program, Cleveland, OH, USA.
James LeverenzCleveland Clinic, Lou Ruvo Center for Brain Health, Cleveland, OH, USA.
Jagan A PillaiCleveland Clinic Neurological Institute, Center for Brain Health, Cleveland Clinic, Cleveland, OH, USA.
Justin B MillerUniversity of Washington, Department of Neurology, Seattle, WA, USA.ORCID 0000-0002-4439-6604
Kathryn MartinezCleveland Clinic, Center for Value-Based Care Research, Cleveland, OH, USA.
Alan J LernerCase Western Reserve University Hospital, Case Western Reserve University, Cleveland, OH, USA.ORCID 0000-0001-9447-6154
Babak TousiCleveland Clinic Neurological Institute, Center for Brain Health, Cleveland Clinic, Cleveland, OH, USA.
Liana G ApostolovaDepartments of Neurology, Radiology, Medical and Molecular Genetics, Indiana University School of Medicine, Indianapolis, IN, USA.
Jalayne J AriasGeorgia State University, School of Public Health Health Policy & Behavioral Sciences, Atlanta, GA, USA.
Corey J BoltonVanderbilt Memory and Alzheimer's Center, Vanderbilt University Medical Center, Nashville, TN, USA.
Alyssa A BrewerDepartments of Cognitive Sciences and Language Science (by Courtesy), Center for Hearing Research, University of California Irvine, Irvine, CA, USA.
Katie BridgemanEdinburgh Dementia Prevention, University of Edinburgh, Edinburgh, UK.
Jeffrey M BurnsUniversity of Kansas City, University of Kansas Alzheimer's Disease Research Center, Kansas City, MO, USA.ORCID 0000-0001-7609-8954
Tracy ButlerWeill Cornell Medicine, Department of Radiology, New York, NY, USA.ORCID 0000-0003-0130-8122
Kris DierickxKU Leuven Centre for Biomedical Ethics and Law, Kapucijnenvoer 7 / 7001 3000 Leuven, Leuven, Flanders, Belgium.
Claire M EricksonBanner Alzheimer's Institute, Phoenix, AZ, USA.
Cristina FestariIRCCS Istituto Centro San Giovanni di Dio Fatebenefratelli, Laboratory of Alzheimer's Neuroimaging and Epidemiology, Brescia, Lombardy, Italy.
Fasihah Irfani FitriDepartment of Neurology, Faculty of Medicine, Universitas Sumatera Utara, Medan, Indonesia.ORCID 0000-0002-0883-3029
Nicole R FowlerDepartment of Medicine, Indiana University School of Medicine, Indianapolis, IN, USA.ORCID 0000-0002-6465-0008
Seth A GaleBrigham and Women's Hospital Department of Neurology, Center for Brain/Mind Medicine, Boston, MA, USA.
Chenlu GaoDepartment of Anesthesia, Critical Care and Pain Medicine, Massachusetts General Hospital, Boston, MA.
Michael D GallagherWhitehead Institute for Biomedical Research, Cambridge, MA, USA.
Kim G JohnsonDuke University, Department of Neurology, Durham, NC, USA.ORCID 0000-0002-8793-2489
Jill K MorrisUniversity of Kansas Medical Center, Department of Neurology, KU Alzheimer's Disease Research Center, Kansas City, KS, USA.ORCID 0000-0001-5911-4190
Corinna PorteriIRCCS Istituto Centro San Giovanni di Dio Fatebenefratelli, Bioethics Unit, Brescia, Lombardy, Italy.
Chenxi QiuBeth Israel Deaconess Medical Center Department of Neurology, Harvard Medical School, Boston, MA, USA.
Annalise Rahman-FilipiakDepartment of Psychiatry, University of Michigan, Ann Arbor, MI, USA.ORCID 0000-0001-6711-6356
Zahra RahemiClemson University School of Nursing, College of Behavioral, Social and Health, Clemson, SC, USA.
Edo RichardDepartment of Neurology, Radboud University Donders Institute for Brain Cognition and Behaviour, Nijmegen, The Netherlands.
Jolien SchaeverbekeNeuroscience, KU Leuven, Leuven, Belgium.
Yaakov SternCognitive Neuroscience Division, Columbia University Vagelos College of Physicians and Surgeons, New York, NY, USA.ORCID 0000-0001-7542-3241
Christine SuverSage Bionetworks, 2901 Third Ave., suite 330, Seattle, WA, USA.
Shanna TrenamanFaculty of Health, College of Pharmacy, Dalhousie University, Halifax, NS, Canada.
Marco Toccaceli BlasiDepartment of Human Neuroscience, University of Rome La Sapienza, Rome, Lazio, Italy.
Rik VandenbergheKU Leuven, Laboratory for Cognitive Neurology, Alzheimer Research Centre & University Hospitals Leuven, Neurology Service, Leuven, Flanders, Belgium.
Sarah WalterUniversity of Southern California Alzheimer's Therapeutic Research Institute, San Diego, CA, USA.
Kristine WilliamsThe University of Kansas Medical Center, School of Nursing, Kansas City, KS, USA.
Lauren R SankaryCleveland Clinic Neurological Institute, Neuroethics Program, Cleveland, OH, USA.ORCID 0000-0002-9698-3616

Funding

Translational and Therapeutics CoreP30AG072959 · NIA · CLEVELAND CLINIC LERNER COM-CWRU · PI Allison L Kraus · 2021 to 2026
$23.9M
Behavioral Change Following Culturally-Informed Biomarker Disclosure in Alzheimer’s DiseaseK23AG070044 · NIA · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI RAHMAN-FILIPIAK, ANNALISE · 2021 to 2025
$914k
NIA NIH HHS K23 AG070044NIA NIH HHS P30 AG072959
6 · The paper itself

Abstract

BackgroundAs criteria for diagnosing Alzheimer's disease and Alzheimer's disease related dementias (AD/ADRD) evolves, AD-related biological measures of biomarkers (e.g., amyloid, tau) and genetic status (e.g.,

Indexed as

Alzheimer DiseaseBiomedical ResearchInformation DisseminationDelphi TechniqueHumansSurveys and QuestionnairesAlzheimer's diseasebiomarkersDelphi methodresearch ethicsreturn of results

Identifiers

PMID40997223
PMCPMC13001161

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.