Evidence map›Paper›PMID 40995869›Full record

ArticleJournal of medical radiation sciences2026

Development and Evaluation of an Electronic Patient-Reported Outcome Platform for Children Undergoing Radiation Therapy.

Mikaela Doig, Andrew Cunningham, Victoria Bedford, Hien Le, Matthew O'Connor, Sophie Jessop, Eva Bezak, Nayana Parange, Amanda Hutchinson, Peter Gorayski and 1 more

Abstract readEvaluation Study
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of medical radiation sciences, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Mikaela DoigUniSA Allied Health and Human Performance, University of South Australia, Adelaide, South Australia, Australia.ORCID https://orcid.org/0000-0002-9912-4489
Andrew CunninghamUniSA STEM, University of South Australia, Adelaide, South Australia, Australia.
Victoria BedfordCancer Voices South Australia, Adelaide, South Australia, Australia.
Hien LeUniSA Allied Health and Human Performance, University of South Australia, Adelaide, South Australia, Australia.
Matthew O'ConnorMichael Rice Centre for Haematology and Oncology, Women's and Children's Hospital, Adelaide, South Australia, Australia.ORCID https://orcid.org/0000-0001-8965-1245
Sophie JessopMichael Rice Centre for Haematology and Oncology, Women's and Children's Hospital, Adelaide, South Australia, Australia.
Eva BezakUniSA Allied Health and Human Performance, University of South Australia, Adelaide, South Australia, Australia.
Nayana ParangeUniSA Allied Health and Human Performance, University of South Australia, Adelaide, South Australia, Australia.
Amanda HutchinsonUniSA Justice and Society, University of South Australia, Adelaide, South Australia, Australia.
Peter GorayskiUniSA Allied Health and Human Performance, University of South Australia, Adelaide, South Australia, Australia.ORCID https://orcid.org/0000-0001-7340-0978
Michala ShortUniSA Allied Health and Human Performance, University of South Australia, Adelaide, South Australia, Australia.ORCID https://orcid.org/0000-0003-2249-3419

Funding

Australian Society of Medical Imaging and Radiation TherapyThe Hospital Research Foundation Group C-PJ-039-Transl-2020
6 · The paper itself

Abstract

introductionHealth-related quality of life (HRQoL) outcomes are not routinely collected in paediatric radiation therapy (RT). This study co-designed and evaluated an electronic platform to support routine HRQoL assessment using patient-reported outcome measures (PROMs).

methodsA digital platform was developed following a user-centred design approach. Development included planning with consumers and clinicians, identifying user needs through interviews and iterative design refinements. Alpha testing was performed with consumers. Beta testing involved directed tasks by children, parents and clinician participants to evaluate the developed platform. Thematic analysis of participant feedback was performed to identify refinements and shape clinical implementation strategies.

resultsIterative alpha testing with end-users led to significant improvements in functionality and aesthetics. Beta testing involved 18 participants, including seven healthcare professionals, seven children and four parents. All participants successfully navigated the platform, completed tasks and interpreted PROM results. Participants described the platform as intuitive and child-friendly. Challenges included minor navigation issues on mobile devices. Suggestions for improvement included streamlined result visualisation and enhancements to the instructional material. Whilst parents and clinicians recognised the value of allowing parents to view their child's PROM results, considerations to ensure sensitivity were described.

conclusionThe electronic PROM platform was successfully developed to support HRQoL assessment of children undergoing RT. Future research is needed to evaluate the feasibility, usability and acceptability in clinical practice.

Indexed as

Patient Reported Outcome MeasuresRadiotherapyAdolescentChildChild, PreschoolFemaleHumansMaleQuality of Lifecancer survivorspaediatric oncologypatient reported outcome measuresquality of liferadiation oncology

Identifiers

PMID40995869
PMCPMC13121576

What OpenQuestion holds

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LicenceCC BY-NC-ND
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.