Evidence map›Paper›PMID 40993586›Full record

ArticleBMC public health2025

Health literacy and self-management of people living with chronic obstructive pulmonary disease or type 2 diabetes in Greenland: a qualitative interpretive description study.

Maja Hykkelbjerg Nielsen, Lene Seibæk, Michael Lynge Pedersen, Annesofie Lunde Jensen

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Article in BMC public health, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

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2citing papers in PubMed
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1 · What the graph read from it

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2 · The registry

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3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

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4 · The record

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5 · Who and what money

Authors and funding

4 authors.

Maja Hykkelbjerg NielsenSteno Diabetes Center Greenland, Queen Ingrid's Hospital, Jens Kreutzmannip aqq. 11, Nuuk, 3900, Greenland. mjni@peqqik.gl.ORCID http://orcid.org/0000-0003-1373-7661
Lene SeibækDepartment of Health and Nature, Greenlandic Center for Health Research, Ilisimatusarfik/University of Greenland, Manutooq 1, Nuussuaq, Nuuk, 3905, Greenland.ORCID http://orcid.org/0000-0002-2396-8669
Michael Lynge PedersenSteno Diabetes Center Greenland, Queen Ingrid's Hospital, Jens Kreutzmannip aqq. 11, Nuuk, 3900, Greenland.ORCID http://orcid.org/0000-0001-8059-9188
Annesofie Lunde JensenDepartment of Clinical Medicine, Aarhus University Hospital, Palle Juul-Jensens Boulevard 99, 8200, Aarhus N, Denmark.ORCID http://orcid.org/0000-0003-2025-6663

Funding

Novo Nordisk Fonden NNF20SA0064190
6 · The paper itself

Abstract

backgroundHealth literacy plays an important role in self-management of non-communicable diseases. To lay the groundwork for development of a patient education intervention for people with chronic obstructive pulmonary disease (COPD) or type 2 diabetes (T2D), this study investigates health literacy and self-management of people with COPD or T2D in Greenland.

methodsIndividual, semi-structured interviews about the experiences of living with COPD or T2D in Greenland were conducted at the National Hospital in Nuuk and at the four regional hospitals. Informants (n = 24) were selected by purposeful sampling. Interviews were audio-recorded. During the analyses, we applied the results using the qualitative methodology Interpretive Description, alongside Osborne's Health Literacy Questionnaire (HLQ) and the Precaution Adoption Process Model (PAPM) as theoretical frameworks.

resultsThree themes emerged: Gaining knowledge of one's disease; Understanding how to apply knowledge in everyday life, and Integrating knowledge to perform self-management. We created a model to illustrate how the three themes could be related to the seven stages in PAPM and with the nine health literacy domains in the HLQ. We found varying levels of knowledge about disease and health literacy among the informants. Furthermore, the informants' experiences were situated at different places in our model. Depending on their position in the model, they needed certain kinds of knowledge related to their disease, such as bio-medical knowledge or experience-based knowledge. Social support from society, peers, and health care professionals was essential at all places in the model. The ability to perform self-management required several skills and competences, which had to be supported to some extent to be able to change lifestyle behaviours and perform self-management.

conclusionsThere was a great desire for more knowledge about COPD and T2D and for information in Greenlandic. The study showed considerable individual variation in knowledge about disease and health literacy, and involving the informants' network in management of the disease was found essential. The study's results can support the development of a culturally adapted patient education intervention. The intervention must be multifaceted, accessible to all citizens in Greenland, targeted to the individuals' situations, prioritised, and quality assured as an integrated part of overall care.

Indexed as

Diabetes Mellitus, Type 2Health LiteracyPulmonary Disease, Chronic ObstructiveSelf-ManagementAdultAgedFemaleGreenlandHealth Knowledge, Attitudes, PracticeHumansInterviews as TopicMaleMiddle AgedQualitative ResearchSurveys and QuestionnairesChronic diseaseChronic obstructive pulmonary diseaseGreenlandHealth literacyNon-communicable diseaseSelf-managementType 2 diabetes

Identifiers

PMID40993586
PMCPMC12462106

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.