Evidence map›Paper›PMID 40990437›Full record

ReviewDiagnosis (Berlin, Germany)2025

Ten years on: how far have we come in patient engagement in diagnosis?

Helen Haskell, Traber Giardina, Io Dolka, Kathryn M McDonald

Abstract readReview
In one paragraph

Review in Diagnosis (Berlin, Germany), 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Helen HaskellMothers Against Medical Error, Columbia, SC, USA.ORCID 0000-0003-2131-7907
Traber GiardinaHouston Center for Innovation in Quality, Effectiveness & Safety, Michael E. DeBakey Veterans Affairs Medical Center, Houston, TX, USA.ORCID 0000-0002-9184-6524
Io DolkaGreyZone Health, Seattle, WA, USA.ORCID 0009-0000-7389-4242
Kathryn M McDonaldSchools of Nursing and Medicine, Johns Hopkins University, Baltimore, MD, USA.ORCID 0000-0002-4049-5744

Funding

AHRQ HHS R18 HS029350AHRQ HHS R18 HS029356
6 · The paper itself

Abstract

The 2015 National Academy of Sciences, Engineering and Medicine report, Improving Diagnosis in Medicine, is known for its inclusive approach to patients. This paper explores the evolution of research in patient engagement in diagnosis over the past decade, drawing from peer-reviewed literature, policy initiatives, and institutional programs. Major themes include expansion from practical patient aids to co-designed patient reporting systems and patient-reported measures; a focus on diagnostic equity across all populations and conditions; and the emergence of comprehensive multidisciplinary theories framing a "diagnostic ecosystem." Drivers of change include long-standing frameworks for patient engagement, advances in health information technology, open access to medical records, and regulatory initiatives designed to enhance patient autonomy and enable systematic capture of patient perspectives. Future research in this area should improve patient-reported measures and reporting systems, identify and address diagnostic disparities, and co-create pathways to fully embrace and value the emerging patient voice.

Indexed as

DiagnosisPatient ParticipationHumansPatient Reported Outcome Measuresartificial intelligence in diagnosisdiagnostic equitydiagnostic safetypatient engagementpatient-reported measuresuncertainty in diagnosis

Identifiers

PMID40990437
PMCPMC13217747

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.