Evidence map›Paper›PMID 40988093›Full record

ArticleWorld journal of surgery2025

Development of the "JPCC Barriers to Pediatric Colostomy Care Scoring System": A Modified Delphi Study.

Giulia Brisighelli, Catterina Bebington, Marion Arnold, Lindiwe Dyamara, Yentl Gamiet, Leila Hartford, Jane Hoole, Laura Obbes, Juan Scribante

Abstract read
In one paragraph

Article in World journal of surgery, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Trial
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Giulia BrisighelliDepartment of Pediatric Surgery, Chris Hani Baragwanath Academic Hospital School of Clinical Medicine, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa.ORCID https://orcid.org/0000-0002-5449-7820
Catterina BebingtonJohannesburg Pediatric Colorectal Clinic, Chris Hani Baragwanath Academic Hospital, Soweto, South Africa.
Marion ArnoldDivision of Paediatric Surgery, Red Cross War Memorial Children's Hospital, Department of Surgery, Faculty of Health Sciences, University of Cape Town, Cape Town, South Africa.
Lindiwe DyamaraDepartment of Pediatric Surgery, Chris Hani Baragwanath Academic Hospital School of Clinical Medicine, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa.
Yentl GamietDepartment of Paediatric Surgery, Sefako Makgatho Health Sciences University, Pretoria, South Africa.
Leila HartfordDepartment of Pediatric Surgery, Chris Hani Baragwanath Academic Hospital School of Clinical Medicine, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa.ORCID https://orcid.org/0000-0001-7120-8827
Jane HooleWits Donald Gordon Medical Centre/Colorectal Unit, Johannesburg, South Africa.ORCID https://orcid.org/0009-0005-3420-0320
Laura ObbesLouise Obbes T/A Cura Care Nursing Services, Windhoek, Namibia.
Juan ScribanteDepartment of Pediatric Surgery, Chris Hani Baragwanath Academic Hospital School of Clinical Medicine, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa.ORCID https://orcid.org/0000-0002-2221-5024

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundIn low- and middle-income countries (LMICs), pediatric colostomy care is associated with significant clinical, social, and economic challenges that negatively impact patient outcomes. This study aimed to identify key barriers to pediatric colostomy care and to develop a scoring system for barriers to colostomy care.

methodsA modified Delphi study was conducted, involving caregivers of pediatric patients with colostomies and health care professionals managing such patients in Southern Africa. Forty individuals were invited to participate (20 caregivers and 20 health care professionals). In Round 1, participants were asked to list barriers to colostomy care via an online REDCap survey. Three authors (GB, CB, JS) thematically grouped identified barriers. In Round 2, participants rated the relevance of each statement: ≥ 75% agreement defined consensus. A virtual Round 3 refinement meeting was held with an expert panel to finalize the scoring system.

resultsOf the 40 invited individuals, 23 (57.5%) participated in Round 1: 12 health care professionals (9 doctors, 2 nurses, and 1 with an unknown profession) and 11 caregivers. Sixteen participants completed Round 2, with consensus reached on all barrier statements. In Round 3, 4 nurses and 4 doctors reviewed and refined the statements, resulting in a final 36-item JPCC barriers to colostomy care scoring system.

conclusionThis study presents the first scoring system specifically designed to measure barriers to pediatric colostomy care in Southern Africa. The scoring system offers a practical framework for research, clinical assessment, and advocacy. Further multicenter validation is recommended to assess its applicability across diverse settings.

Indexed as

ColostomyHealth Services AccessibilityAfrica, SouthernChildConsensusDelphi TechniqueDeveloping CountriesFemaleHumansMaleSouth AfricaSurveys and Questionnairesassessmentchallengeschildrencolostomyscoring systemstoma

Identifiers

PMID40988093
PMCPMC12515028

What OpenQuestion holds

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LicenceCC BY
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.