Evidence map›Paper›PMID 40988087›Full record

ArticlePrenatal diagnosis2025

Associations of Physician Perspectives, Personal Choices, and Counseling for Severe Congenital Heart Defects.

Joyce L Woo, Tara M Swanson, Shiraz A Maskatia, Shaine A Morris, John D Lantos, Angira Patel

Abstract readMulticenter Study
In one paragraph

Article in Prenatal diagnosis, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Article
  2. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Joyce L WooAnn & Robert H. Lurie Children's Hospital of Chicago, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USA.ORCID 0000-0001-6958-4903
Tara M SwansonKansas City Pediatric Cardiology Associates, Kansas City, Missouri, USA.
Shiraz A MaskatiaLucile Packard Children's Hospital, Stanford University School of Medicine, Palo Alto, California, USA.ORCID 0000-0002-8056-0934
Shaine A MorrisBaylor College of Medicine, Texas Children's Hospital, Houston, Texas, USA.
John D LantosJDL Bioethics Consulting Group, Ossining, New York, USA.
Angira PatelAnn & Robert H. Lurie Children's Hospital of Chicago, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USA.

Funding

Prenatal Care and Postnatal Outcomes for Publicly Insured Children with Congenital Heart DefectsK01HL171819 · NHLBI · LURIE CHILDREN'S HOSPITAL OF CHICAGO · PI Joyce L Woo · 2025 to 2026
$337k
NHLBI NIH HHS K01 HL171819NIH HHS K01HL171819
6 · The paper itself

Abstract

objectiveTo assess whether physicians' perspectives of outcomes or personal choices are associated with prenatal counseling for termination of pregnancy (TOP) or perinatal hospice for severe congenital heart defects (CHDs).

methodMulticenter survey of pediatric cardiologists and congenital heart surgeons in the United States, 2016-2018. The survey measured perspectives of CHD outcomes, personal choices/considerations, and prenatal counseling for TOP or perinatal hospice. Bivariate comparisons estimated associations between outcome perspectives, personal choices, and counseling.

resultsResponse rate was 77% (135/176); 47% (63/135) believed that single-ventricle portends good long-term quality of life or transplant-free survival. The majority (70%-90% depending on CHD type) would consider perinatal hospice for their own child, but a minority (2%-16% depending on CHD type) would choose perinatal hospice over TOP or postnatal intervention. Physicians who would consider TOP for themselves/their partner were more likely to counsel about TOP than physicians who would not consider TOP for themselves/their partner (99% vs. 67%, p < 0.001). There were no associations between institutional practice, outcome perspectives, personal consideration for hospice, and counseling practices.

conclusionPhysician perspectives of single-ventricle outcomes remain guarded but were not associated with counseling. However, personal choices/considerations are associated with counseling practices; therefore, considering personal beliefs is crucial to help families make fully informed decisions.

Indexed as

Attitude of Health PersonnelChoice BehaviorCounselingHeart Defects, CongenitalPhysiciansAdultCardiologistsFemaleHumansMalePregnancySurveys and QuestionnairesUnited States

Identifiers

PMID40988087
PMCPMC12530347

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.