Evidence map›Paper›PMID 40986272›Full record

ArticleJournal of autism and developmental disorders2025

Brief Report: Parental Perceptions of Helpfulness of Support Services for Autistic Children.

K M Jonkman, E Back, S Begeer, W G Staal, A M Scheeren

Abstract read
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In one paragraph

Article in Journal of autism and developmental disorders, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Internet Guidance on Feeding for Parents of Children With Autism.Journal of autism and developmental disorders · 2025
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

K M JonkmanDepartment of Clinical, Neuro and Developmental Psychology, Vrije Universiteit Amsterdam, and Amsterdam Public Health Research Institute, Amsterdam, The Netherlands. k.m.jonkman@vu.nl.ORCID http://orcid.org/0000-0002-7724-2951
E BackDepartment of Psychology, Kingston University London, London, UK.
S BegeerDepartment of Clinical, Neuro and Developmental Psychology, Vrije Universiteit Amsterdam, and Amsterdam Public Health Research Institute, Amsterdam, The Netherlands.
W G StaalFaculty of Social Sciences, Leiden University, Leiden, The Netherlands.
A M ScheerenDepartment of Clinical, Neuro and Developmental Psychology, Vrije Universiteit Amsterdam, and Amsterdam Public Health Research Institute, Amsterdam, The Netherlands.

Funding

Kingston University Research Development AllowanceZonMw 60-63600-98-834
6 · The paper itself

Abstract

purposeThis study explores parental perceptions of the helpfulness of support services for autistic children, including psychological and behavioural interventions, pharmacological interventions, and (practical) guidance services.

methodsParents of 210 children with autism (aged 16 or younger, mean age 12.1) filled in a survey about service use of their child and services' perceived helpfulness.

resultsEarly intensive behavioural interventions, such as Applied Behavior Analysis and Pivotal Response Treatment, as well as pharmacological treatments, like Aripiprazole, Risperidone and Methylphenidate, received high helpfulness ratings despite infrequent use. Conversely, guidance services, such as support for school or social relationships, were widely utilized but rated less helpful.

conclusionSupport services with evidence of impact on abilities, skills and irritability ranked high on perceived helpfulness, suggesting some alignment between perceived helpfulness and proven effectiveness of support services. Low helpfulness ratings for guidance services indicate the need for improvement, like tailoring programs to better meet the child's needs. However, parental perceptions might not always match with the child's own perspective. This study underscores the need to look beyond traditional outcome measures such as changes in autism-related characteristics. We should integrate the perspectives of autistic individuals and their families in the design and evaluation of support services.

Indexed as

GuidancePharmacological interventionsSupport servicesTherapeutic interventions

Identifiers

PMID40986272

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.