Evidence map›Paper›PMID 40974417›Full record

ArticlePediatric cardiology2026

Health-Related Quality of Life in Adolescents and Young Adults with Congenital Heart Disease and Its Predictors, Including Subjective Transition Readiness to Adulthood.

Kazuteru Niinomi, Shoji Yoshikawa, Toshiaki Sato, Hiroko Omori, Kayoko Miyashita

Abstract read
In one paragraph

Article in Pediatric cardiology, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Kazuteru NiinomiDepartment of Integrated Health Sciences, Nagoya University Graduate School of Medicine, 1-1-20 Daiko-Minami, Higashi-ku, Nagoya, Aichi, 461-8673, Japan. niinomi.kazuteru.k8@f.mail.nagoya-u.ac.jp.ORCID http://orcid.org/0000-0002-2195-7536
Shoji YoshikawaFaculty of Nursing, Shijonawate Gakuen University, Daito, Osaka, Japan.
Toshiaki SatoFaculty of Nursing, Shijonawate Gakuen University, Daito, Osaka, Japan.
Hiroko OmoriCollege of Nursing, Gifu College of Nursing, Hashima, Gifu, Japan.
Kayoko MiyashitaGraduate School of Nursing, Osaka Metropolitan University, Osaka, Japan.

Funding

JSPS KAKENHI 18K10412JSPS KAKENHI 22K11050
6 · The paper itself

Abstract

Although international studies have examined the health-related quality of life (HRQoL) of adolescents and young adults (AYAs) with congenital heart disease (CHD), those focusing specifically on predictors including transition readiness to adulthood remain limited, particularly in Japan. This study aimed to evaluate HRQoL among AYAs with CHD and its predictors. This cross-sectional survey included 86 participants with CHD from 4 outpatient pediatric cardiology clinics and a parents' peer support group in Japan. The MOS Short-Form 36-Item Health Survey (SF-36) was conducted, and information was obtained on demographics, physical conditions, and participants' transition readiness assessment. The three SF-36 component summary scores as dependent variables were compared against standard values and analyzed using multiple linear regression analyses. Participants' mean age was 21.3 years (standard deviation = 3.6). Compared to national standard values, component scores showed no apparent differences, except in a lower role/social component summary in females. The presence of arrhythmia and cyanosis, New York Heart Association (NYHA) functional classification, physical disability certification grade, and a transition readiness item together accounted for 36.1% of the variance in the physical component summary. Families living together, CHD-related surgery experience within the last 3 years, and one transition readiness item explained 19.8% of the variance in the mental component summary. Participants' sex and NYHA explained 13.6% of the variance in RCS. Physical conditions and subjective transition readiness partially predicted the HRQoL of AYAs with CHD. Females may be aware that being unable to fulfill expected social roles may prevent them from achieving optimum HRQoL.

Indexed as

Heart Defects, CongenitalQuality of LifeTransition to Adult CareAdolescentAdultCross-Sectional StudiesFemaleHealth StatusHumansJapanMaleSurveys and QuestionnairesYoung AdultAdolescents and young adultsCongenital heart diseaseHealth-related quality of lifeSelf-reliant lifeTransition

Identifiers

PMID40974417
PMCPMC13498473

What OpenQuestion holds

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LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.