Evidence map›Paper›PMID 40972082›Full record

ArticleThe Gerontologist2025

From diagnosis to dialogue: a call for support of older adults with a late autism diagnosis.

Marije Blok, Frans W Jacobs, Arjan C Videler, Hilde M Geurts, Jan Pieter Teunisse

Abstract read
In one paragraph

Article in The Gerontologist, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Marije BlokDepartment of Sociology, Faculty of Social Sciences, VU University Amsterdam, The Netherlands.ORCID 0000-0001-6467-5590
Frans W JacobsResearch Group 'Fulfilling Life with Autism' (Volwaardig Leven met Autisme), HAN University of Applied Sciences, Nijmegen, The Netherlands.
Arjan C VidelerPersonaCura, Clinical Center of Excellence for Personality Disorders and Developmental Disorders in Older Adults, Tilburg, The Netherlands.
Hilde M GeurtsDutch Autism & ADHD Research Center (d'Arc), Brain & Cognition Department of Psychology, University of Amsterdam, The Netherlands.
Jan Pieter TeunisseResearch Group 'Fulfilling Life with Autism' (Volwaardig Leven met Autisme), HAN University of Applied Sciences, Nijmegen, The Netherlands.

Funding

Dutch Agis Innovatiefonds
6 · The paper itself

Abstract

Although both in autism and gerontological research the attention for aging well with autism is growing, little attention has been paid to the impact of receiving an autism diagnosis in later life. This is unfortunate, as nowadays many of the older adults on the autism spectrum have spent most of their lives being unaware of their autism. Drawing on previous research, our combined personal and professional experiences, and the narratives of eighteen older adults diagnosed later in life (aged 60-77, 50% female), we argue that a late autism diagnosis necessitates a fundamental rethinking of aging, identity, personal relationships, and appropriate support. Effective interventions must be tailored to the specific needs and strengths of this population, ensuring that late-diagnosed older adults with autism receive the recognition, understanding, and tools they require to navigate their lives with confidence and self-awareness. Our findings highlight the need for a conceptual shift in how gerontology understands and addresses autism among older adults. In addition, the narratives of the older adults informed the (co-)creation of a conversational tool designed to help older adults with autism articulate personal boundaries and aspirations. By fostering understanding and dialogue, this initiative extends beyond individual transformation to promote broader societal awareness and support.

Indexed as

AgingAutistic DisorderCommunicationDelayed DiagnosisSocial SupportAgedFemaleHumansMaleMiddle AgedAutismNeurodiversityPsychiatryPsychology of agingWellbeing

Identifiers

PMID40972082
PMCPMC12526855

What OpenQuestion holds

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LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.