Evidence map›Paper›PMID 40970522›Full record

ArticleJournal of the American Heart Association2025

Stroke Caregiver Needs in a Population-Based Study.

Roshanak Mehdipanah, Lewis B Morgenstern, Madeline Kwicklis, Melinda A Smith, Erin Case, Lynda D Lisabeth

Abstract read
In one paragraph

Article in Journal of the American Heart Association, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Roshanak MehdipanahSchool of Public Health University of Michigan Ann Arbor MI USA.ORCID 0000-0001-6821-0715
Lewis B MorgensternSchool of Public Health University of Michigan Ann Arbor MI USA.ORCID 0000-0002-5787-592X
Madeline KwicklisSchool of Public Health University of Michigan Ann Arbor MI USA.ORCID 0000-0003-1720-1186
Melinda A SmithSchool of Public Health University of Michigan Ann Arbor MI USA.
Erin CaseSchool of Public Health University of Michigan Ann Arbor MI USA.
Lynda D LisabethSchool of Public Health University of Michigan Ann Arbor MI USA.ORCID 0000-0001-5539-5933

Funding

STROKE SURVEILLANCE IN A BIETHNIC COMMUNITYR01NS038916 · NINDS · UNIVERSITY OF TEXAS HLTH SCI CTR HOUSTON · PI LISABETH, LYNDA D, MORGENSTERN, LEWIS B · 1999 to 2023
$20.9M
Brain Attack Surveillance in Corpus Christi (BASIC) ProjectR37NS038916 · NINDS · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI LYNDA D LISABETH, LEWIS B MORGENSTERN · 2024 to 2026
$3.7M
Improving Post-Acute Care to Reduce Ethnic Stroke DisparitiesR01NS107463 · NINDS · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI LISABETH, LYNDA D, MORGENSTERN, LEWIS B · 2019 to 2023
$3.3M
NINDS NIH HHS R01 NS038916NINDS NIH HHS R01 NS107463NINDS NIH HHS R37 NS038916
6 · The paper itself

Abstract

backgroundMost individuals who have experienced a stroke require comprehensive rehabilitation beyond initial medical care, with informal, unpaid caregivers playing a crucial role in aiding recovery and daily activities. Caregivers face significant burdens due to unmet care needs of their care recipients. This study examines the community needs of individuals who have experienced a stroke and their caregivers, while also exploring their awareness and use of existing services in Nueces County, Texas.

methodsThe study used concept mapping and interviews. Concept mapping, a mixed-method approach, collected qualitative input on perceived needs by a subsample of caregivers from the parent study. Participants then sorted and rated perceived needs. Using this information, multidimensional scaling and cluster analyses mapped relationships between perceived needs and determined their importance and priority. Interviews were completed with all caregivers in the parent study. Responses were analyzed for ethnic differences when possible.

resultsThe following 5 clusters were derived from the concept mapping (N=16), listed in order of highest ratings of importance: medical care needs, financial and legal resource needs, caregiver support needs, daily care needs, and housing and transportation needs. Interview findings (N=228) showed that both Mexican American (n=168) and non-Hispanic White (n=60) caregivers had low awareness and use rates for services like caregiver support and senior centers, with significant ethnic disparities in stroke information awareness that disappeared upon adjustment.

conclusionsBy understanding the needs of caregivers and individuals affected by stroke, we can better support caregivers in managing the condition and help them thrive in this role.

Indexed as

CaregiversHealth Services Needs and DemandNeeds AssessmentStrokeStroke RehabilitationAdultAgedCost of IllnessFemaleHealth Knowledge, Attitudes, PracticeHumansMaleMexican AmericansMiddle AgedTexasWhiteethnicityhealth disparitiesinformal caregiversstroke needs

Identifiers

PMID40970522
PMCPMC12684519

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.