A Parent-Response Screening Inventory for Fragile X Syndrome: Development & Testing with an International Sample.

Vanessa A Johnson, Yolanda M Powell-Young, Bradley Brossman, Elecia Kim, Stephanie L Sherman

Abstract read

In one paragraph

Article in Journal of theory construction & testing. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it

0cells of the map it votes in

0citing papers in PubMed

–field-weighted citation impact

1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Vanessa A JohnsonFlorida AtLantic University's Christine E. Lynn College of Nursing.

Yolanda M Powell-YoungDillard University School of Nursing and Center for Minority Health and Health Disparities in New Orleans; she also holds appointment as Adjunct faculty at the University of Iowa College of Nursing.

Bradley BrossmanAmerican Board of Internal Medicine.

Elecia KimBaylor College of Medicine.

Stephanie L ShermanEmory University School of Medicine's Department of Human Genetics.

Funding

POSTDOCTORAL TRAINING IN CLINICAL GENETICS RESEARCHT32NR007110 · NINR · UNIVERSITY OF IOWA · PI WILLIAMS, JANET K. · 2001 to 2010

$1.6M

NIMHD NIH HHS L32 MD002589NINR NIH HHS T32 NR007110

6 · The paper itself

Abstract

Fragile X syndrome, caused by a mutation in the FMR1 gene, is the most commonly inherited form of intellectual disability in children. Because the physical and early behavioral signs of Fragile X are often subtle, parents are often in the best position to advance early recognition and treatment. The Biopsychosocial Screening Inventory for Fragile X (BIPSSI-FX) was designed as an early detection parent-response inventory. A mixed-methods exploratory study of 886 caregivers, recruited from 22 countries across 5 continents, of children aged 1 through 18 years was used to refine a reliable and valid instrument.

Indexed as

African AmericanFMR1 GeneFragile X SyndromeInternationalParent Response ToolScreening

Identifiers

PMID40970271

PMCPMC12443307

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.