Evidence map›Paper›PMID 40968308›Full record

ArticleJournal of religion and health2026

Navigating Glycogen Storage Disease: The Spiritual and Cultural Journeys of Jordanian Mothers.

Khulood Kayed Shattnawi, Raheeq Mohammad Al-Hmoud

Abstract read
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In one paragraph

Article in Journal of religion and health, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

2 authors.

Khulood Kayed ShattnawiMaternal and Child Health Nursing Department, Faculty of Nursing, Jordan University of Science and Technology, P.O. Box (3030), Irbid, 22110, Jordan. khuloods@just.edu.jo.ORCID http://orcid.org/0000-0002-8601-5427
Raheeq Mohammad Al-HmoudMaternal and Child Health Nursing Department, Faculty of Nursing, Jordan University of Science and Technology, Irbid, Jordan.

Funding

Deanship of Research, Jordan University of Science and Technology 20240037
6 · The paper itself

Abstract

This study explored the lived experiences of Jordanian mothers caring for children with Glycogen Storage Disease (GSD), with a particular focus on the spiritual and cultural frameworks that shaped their caregiving. Using a descriptive phenomenological approach, semi-structured interviews were conducted with 13 mothers. The findings revealed significant emotional, financial, and social burdens, including stigma, exhaustion, and strained family dynamics. Mothers consistently drew on their Islamic faith to interpret and endure these challenges, viewing caregiving as a spiritual duty and relying on practices such as prayer, patience, and Qur'ānic recitation. Many also expressed unmet spiritual care needs and called for greater integration of faith-sensitive support within healthcare and community settings. These findings underscore the need for holistic care models that acknowledge the central role of spirituality in shaping caregiver resilience and meaning-making in rare disease contexts.

Indexed as

CaregiversMothersSpiritualityAdultFemaleHumansInterviews as TopicIslamJordanMiddle AgedQualitative ResearchEmotional challengesGlycogen Storage DiseasesHealthcare supportMothers’ experiencesQualitative researchSocial stigmaSpiritual coping

Identifiers

PMID40968308

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.