Evidence map›Paper›PMID 40963427›Full record

ArticleJournal of intellectual disability research : JIDR2025

Evaluating the Hearing-Related Quality of Life in People With Intellectual Disabilities.

Susanna Zielonkowski, Philipp Mathmann, Awa Naghipour, Susanne Wasmuth, Lukas Prein, Ross Parfitt, Werner Brannath, Martin Scharpenberg, Vincent Jankovic, Anja Neumann and 5 more

Abstract read
In one paragraph

Article in Journal of intellectual disability research : JIDR, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

  1. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

15 authors.

Susanna ZielonkowskiDepartment of Phoniatrics and Pediatric Audiology, University Hospital Muenster, University of Muenster, Muenster, Germany.ORCID 0009-0002-4280-3090
Philipp MathmannDepartment of Phoniatrics and Pediatric Audiology, University Hospital Muenster, University of Muenster, Muenster, Germany.
Awa NaghipourDepartment of Phoniatrics and Pediatric Audiology, University Hospital Muenster, University of Muenster, Muenster, Germany.
Susanne WasmuthDepartment of Phoniatrics and Pediatric Audiology, University Hospital Muenster, University of Muenster, Muenster, Germany.
Lukas PreinDepartment of Phoniatrics and Pediatric Audiology, University Hospital Muenster, University of Muenster, Muenster, Germany.
Ross ParfittDepartment of Phoniatrics and Pediatric Audiology, University Hospital Muenster, University of Muenster, Muenster, Germany.
Werner BrannathCompetence Center for Clinical Trials Bremen, University of Bremen, Bremen, Germany.ORCID 0000-0002-8622-3904
Martin ScharpenbergCompetence Center for Clinical Trials Bremen, University of Bremen, Bremen, Germany.
Vincent JankovicCompetence Center for Clinical Trials Bremen, University of Bremen, Bremen, Germany.
Anja NeumannInstitute for Health Care Management and Research, University of Duisburg-Essen, Essen, Germany.
Katharina SchwarzeInstitute for Health Care Management and Research, University of Duisburg-Essen, Essen, Germany.
Karolin SchäferInstitute for Special Needs Education (d/Deaf and Hard of Hearing), University of Duisburg-Essen, Germany.
Christian SpeckemeierEssener Forschungsinstitut fuer Medizinmanagement-EsFoMed GmbH, Essen, Germany.
Corinna GietmannDepartment of Phoniatrics and Pediatric Audiology, University Hospital Muenster, University of Muenster, Muenster, Germany.
Katrin NeumannDepartment of Phoniatrics and Pediatric Audiology, University Hospital Muenster, University of Muenster, Muenster, Germany.

Funding

German Innovation Fund 01NVF18038
6 · The paper itself

Abstract

backgroundPeople with intellectual disabilities are more likely to have hearing loss than the general population, but in most cases, it remains unrecognised and unmanaged. The aims of this study were to determine whether the hearing status of people with intellectual disabilities can be correctly evaluated by themselves and/or their caregivers, and whether hearing loss compromises the hearing-related quality of life of people with intellectual disabilities.

methodIn the prospective cohort study, HörGeist, 1053 individuals with intellectual disabilities received hearing screening and, where necessary, diagnostic assessment and intervention within their living environment. A self-developed multipart questionnaire, including items regarding hearing-related quality of life, was answered by caregivers of the participants and was cross-checked with the results of the hearing tests. A multivariable regression was performed to verify an association between the hearing-related quality of life score and the degree of hearing loss.

resultsHearing loss was diagnosed in 463 (44.0%) participants; thereof, only 120 (25.9%) cases were known beforehand. In 404 participants (59.0%) and 580 caregivers (61.5%), hearing status was rated correctly; it was overestimated in 34.6% and 33.4%, respectively (sensitivity: 0.223/0.271, respectively). The mean hearing-related quality of life score was 3.0 of 4 possible points. The multivariable regression revealed a small but significant association between the degree of hearing loss and hearing-related quality of life (β = -0.069; p < 0.001; adjusted R

conclusionsRegular audiometric tests are recommended for improving the hearing-related quality of life in people with intellectual disabilities.

Indexed as

Hearing LossIntellectual DisabilityQuality of LifeAdolescentAdultAgedCaregiversFemaleHumansMaleMiddle AgedProspective StudiesYoung Adultassessmenthearing lossintellectual disabilityquality of life

Identifiers

PMID40963427
PMCPMC12580484

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.