Evidence map›Paper›PMID 40960582›Full record

ArticleClinical rheumatology2025

Understanding spiritual well-being in patients with systemic sclerosis and its effect on the illness: a scoping review.

Stella Gkountinaki, Foula Protopapa, Amit Syal, Andreas Chatzittofis, Konstantinos Parperis, Chris T Derk

Abstract readScoping Review
In one paragraph

Article in Clinical rheumatology, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
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0citing papers in PubMed
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1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

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Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Stella GkountinakiUniversity of Cyprus Medical School, Nicosia, Cyprus.
Foula ProtopapaEuropean University of Cyprus School of Medicine, Nicosia, Cyprus.
Amit SyalSidney Kimmel Medical College, Thomas Jefferson University, Philadelphia, USA.
Andreas ChatzittofisDepartment of Psychiatry, University of Cyprus, Nicosia, Cyprus.
Konstantinos ParperisDivision of Rheumatology, University of Cyprus, Nicosia, Cyprus.
Chris T DerkDivision of Rheumatology, University of Pennsylvania, Philadelphia, USA. Chris.Derk@uphs.upenn.edu.ORCID http://orcid.org/0000-0001-7786-9714

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundSpirituality has become an increasingly important domain of care in chronic diseases, yet little is known about its impact in systemic sclerosis (SSc), a rare autoimmune condition associated with high psychosocial burden. Understanding the spiritual well-being of these patients may offer important insights into coping, quality of life, and patient-centered interventions.

methodsThis scoping review followed PRISMA guidelines and included a comprehensive search of five databases for studies addressing spirituality in patients with SSc. We extracted demographic and methodological details from each study and assessed quality using the Joanna Briggs Institute (JBI) criteria.

resultsTen studies met inclusion criteria. Spirituality was frequently associated with improved psychological outcomes, including reduced depression and anxiety, increased life satisfaction, and greater resilience. Instruments used to assess spirituality included FACIT-Sp, MI-RSWB, and STS, among others. However, heterogeneity in methodology and limited focus on SSc-specific populations remain notable.

conclusionSpiritual well-being plays a significant role in the lived experience of patients with SSc. Future studies should standardize measurement tools and examine culturally sensitive, spirituality-integrated interventions. Incorporating spiritual assessment into rheumatologic care may enhance patient outcomes. Key Points •Spiritual well-being is increasingly recognized as a critical domain of health in patients with chronic illnesses, including systemic sclerosis. •Spirituality is a relevant and influential factor in the lived experience of SSc. It affects not only how patients understand and cope with their illness but also how they engage with healthcare systems. •Spirituality was frequently associated with improved psychological outcomes, including reduced depression and anxiety, increased life satisfaction, and greater resilience.

Indexed as

Quality of LifeScleroderma, SystemicSpiritualityAdaptation, PsychologicalAnxietyDepressionHumansCoping skillsPatient centered carePersonal satisfactionPsychological resilienceQuality of lifeSclerodermaSpiritualitySystemic sclerosis

Identifiers

PMID40960582
PMCPMC12568786

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