ArticleTransgender health2025
Development of a Patient-Reported Outcome Measure for Youth Receiving Gender-Affirming Care: The GENDER-Q Youth Module.
Article in Transgender health, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
4 citing papers in PubMed.
- GENDER-Q Youth Patient-Reported Outcome Measure: Protocol for an International Cross-Sectional Field Test Study.JMIR research protocols · 2026Article
- Co-Development and Validation of a Patient-Reported Experience Measure for Trans and Gender Diverse Young People: A Multi-Stage Participatory Study Protocol.Health expectations : an international journal of public participation in health care and health policy · 2026Article
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Corrections and comments
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Authors and funding
12 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Purpose: This study aimed to develop and establish the content validity of a patient-reported outcome measure for youth receiving gender-affirming care (GENDER-Q Youth). Methods: This mixed-methods study involved concept elicitation interviews with youth who were seeking/receiving gender-affirming care (February 2019-October 2023). Data were used to develop a conceptual framework and set of independent functioning scales. Scales were refined through clinical and research expert input and cognitive debriefing interviews with youth (December 2023-April 2024). A pilot test was conducted to examine scale psychometric performance, overall content validity, and acceptability (July 2024). Results: The concept elicitation interview sample included 47 youth aged 12-19 years. A conceptual framework with four main domains was created and included: health-related quality of life, gender practices, voice, and experience of care. To measure aspects of the framework, 17 scales (292 items) were developed and refined with input from 33 experts and 17 youth. The pilot test sample included 406 youth aged 18-25 years. Most respondents agreed that GENDER-Q Youth was easy to understand, thorough, asked important questions in a respectful way, felt safe to complete, and made them feel that their voice would be heard. The field test version of GENDER-Q Youth includes 16 scales (248 items). Conclusion: Evidence of content validity of GENDER-Q Youth was established based on extensive input from experts and youth.
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Registered trials
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