ArticlePediatric rheumatology online journal2025
Children's experiences of a support program during their first year with juvenile idiopathic arthritis : - Insights from qualitative interviews.
Article in Pediatric rheumatology online journal, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
1 citing paper in PubMed.
- Integrated pain management in a child with arthritis in Cape Verde: a case report.Frontiers in pediatrics · 2026Article
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundResearch reveals that both children and parents often experience fear and anxiety upon being diagnosed with a chronic disease like juvenile idiopathic arthritis. A one-year juvenile arthritis support program (JASP-1) has been developed to offer patient- and family-centered support and education to empower children and their parents in their new situation. However, there is limited knowledge about children's experiences of participating in such support programs. Therefore, this study aimed to describe children's experiences of participating in JASP-1 during their first year with juvenile idiopathic arthritis.
methodsData were collected using individual semi-structured interviews with children who had participated in JASP-1. The interviews were transcribed and analyzed using qualitative content analysis.
resultsFourteen children between 12 and 17 years of age, with a mean age of 14 years, were interviewed. Three distinct categories were identified. The children reported that their involvement in JASP-1 provided them with a sense of security through treatment, a sense of security through information and support; and that contact, visits, and school presence were in balance.
conclusionThe results showed that JASP-1 successfully integrated contact through phone calls, visits, and medical and psychosocial support in a satisfactory and accessible way for children recently diagnosed with JIA. This provided them with a comprehensive sense of security. Our findings indicate that patient- and family-centered programs like JASP-1 not only have the potential to enhance and standardize care for children newly diagnosed with JIA but also to contribute to improved and equitable healthcare outcomes in the future.
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