Evidence map›Paper›PMID 40955805›Full record

ArticleAging & mental health2026

Adaptation and psychometric validation of treatment burden questionnaire for caregivers of older adults with diabetes and dementia.

Oluwaseun Adeyemi, Jason Fletcher, Pooja Patel, Rosie Ferris, Caroline Blaum, Joshua Chodosh

Abstract readValidation Study
In one paragraph

Article in Aging & mental health, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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0cells of the map it votes in
0citing papers in PubMed
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1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

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Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Oluwaseun AdeyemiDepartment of Emergency Medicine, New York University Grossman School of Medicine, New York, NY, USA.
Jason FletcherRory Meyers College of Nursing, New York University Grossman School of Medicine, New York, NY, USA.
Pooja PatelDepartment of Medicine, New York University Grossman School of Medicine, New York, NY, USA.
Rosie FerrisDepartment of Population Health Sciences, Weill Cornell Medicine, New York, NY, USA.
Caroline BlaumDepartment of Medicine, National Committee for Quality Assurance, Washington, DC, USA.
Joshua ChodoshDepartment of Medicine, New York University Grossman School of Medicine, New York, NY, USA.

Funding

Research Education ComponentP30AG066512 · NIA · NEW YORK UNIVERSITY SCHOOL OF MEDICINE · PI Mary Sherman Mittelman · 2020 to 2026
$28.4M
Enhanced Quality in Primary Care for Elders with Diabetes and Dementia (EQUIPED-ADRD)R33AG057291 · NIA · NEW YORK UNIVERSITY SCHOOL OF MEDICINE · PI CHODOSH, JOSHUA · 2018 to 2021
$3.2M
NIA NIH HHS P30 AG066512NIA NIH HHS R33 AG057291
6 · The paper itself

Abstract

objectivesCaregivers may experience treatment burden as they care for persons living with dementia and diabetes. This study aims to adapt and validate the Treatment Burden Questionnaire (TBQ) for use among caregivers.

methodFor this cross-sectional study, we pooled data of caregivers enrolled in the Enhanced Quality in Primary Care for Elders with Diabetes and Dementia study (

resultsAll 15 items in the caregiver TBQ demonstrated face validity, had high acceptability, with a Cronbach alpha of 0.89. The PCA identified three domains-medication monitoring burden, healthcare access burden, and social care burden. Subscale domain reliability was 0.86, 0.77, and 0.77, respectively. The three subscales exhibited significant small to moderate correlations with the stress thermometer, Medical Outcomes Study, and physical and mental health Patient-Reported Outcomes Measurement Information System scores.

conclusionThe caregiver TBQ is a reliable and valid tool that captures domains of medication monitoring, healthcare access, and social care burden.

Indexed as

Caregiver BurdenCaregiversCost of IllnessDementiaDiabetes MellitusPsychometricsAgedAged, 80 and overCross-Sectional StudiesFemaleHumansMaleMiddle AgedReproducibility of ResultsSurveys and Questionnairescaregiverdementiadiabetessurvey validationTreatment burden

Identifiers

PMID40955805
PMCPMC12547969

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.