Evidence map›Paper›PMID 40937068›Full record

ArticleDigital health

Facebook as an arena for peer support?-Knowledge exchange and normative illness narratives about stroke.

Lill Hultman, Ulla-Karin Schön, Fredrik Sandman, Mikael Åkerlund, Jeanette Nelson, Malin Tistad

Abstract read
In one paragraph

Article in Digital health. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Lill HultmanDivision of Family Medicine and Primary Care, Department of Neurobiology, Care Science and Society (NVS), Karolinska Institutet, Huddinge, Sweden.ORCID https://orcid.org/0000-0001-6333-2852
Ulla-Karin SchönDivision of Social Work, Stockholm University, Stockholm, Sweden.
Fredrik SandmanDivision of Family Medicine and Primary Care, Department of Neurobiology, Care Science and Society (NVS), Karolinska Institutet, Huddinge, Sweden.
Mikael ÅkerlundDivision of Family Medicine and Primary Care, Department of Neurobiology, Care Science and Society (NVS), Karolinska Institutet, Huddinge, Sweden.
Jeanette NelsonDivision of Family Medicine and Primary Care, Department of Neurobiology, Care Science and Society (NVS), Karolinska Institutet, Huddinge, Sweden.
Malin TistadDivision of Family Medicine and Primary Care, Department of Neurobiology, Care Science and Society (NVS), Karolinska Institutet, Huddinge, Sweden.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: Experiencing a stroke disrupts the expected life course and can negatively impact cognitive, emotional, and physical functioning, making it a major source of disability globally. To support recovery, individuals can seek help by sharing their experiences in peer-to-peer support communities. Objective: The objective of this study was to use discourse analysis to examine how members of a peer-to-peer online support community for stroke survivors construct their understanding of the condition and use narratives to reconstruct their identity into different subject positions. Methods: The study context was a private Swedish peer-to-peer online support community created and administered by middle-aged people with lived experience of stroke. Data was collected through structured protocols that captured the content of posts and comments ( Results: Our findings suggest that identity struggles revolve around looking ahead and negotiating normative expectations with oneself and others. We identified five subject positions: survivor, pathfinder, mentor, struggler, and outsider. These positions highlight the plurality and fluidity of post-stroke identity processes. Members often shifted between these roles based on changes in health, emotional state, or community interactions. Conclusions: The diversity of subject positions demonstrates that stroke recovery is not a uniform process, emphasizing the importance of recognizing identity work as a core aspect of post-stroke adaptation. The findings highlight the need for more flexible, patient-centered services that accommodate diverse narratives, including those shaped by long-term disability, emotional trauma, and shifting life priorities.

Indexed as

normative discoursesPeer-to-peer online supportrecovery processstroke

Identifiers

PMID40937068
PMCPMC12420960

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.