Evidence map›Paper›PMID 40934319›Full record

ArticleScience (New York, N.Y.)2025

The precarious future of consumer genetic privacy.

Natalie Ram, Anya E R Prince, Jessica L Roberts, Dov Fox, Kayte Spector-Bagdady

Abstract read
In one paragraph

Article in Science (New York, N.Y.), 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Review
  2. Review
  3. Article
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Natalie RamUniversity of Maryland Francis King Carey School of Law, Baltimore, MD, USA.
Anya E R PrinceUniversity of Iowa College of Law, Iowa City, IA, USA.
Jessica L RobertsEmory University School of Law, Atlanta, GA, USA.
Dov FoxUniversity of San Diego School of Law, San Diego, CA, USA.
Kayte Spector-BagdadyMichigan Bioethics, University of Michigan Medical School, Ann Arbor, MI, USA.

Funding

The National Dementia Workforce StudyU54AG084520 · NIA · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI DONOVAN T MAUST, JOANNE E. SPETZ · 2023 to 2026
$81.0M
Michigan Institute for Clinical and Health Research (MICHR)UL1TR002240 · NCATS · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI LUMENG, JULIE C, MASHOUR, GEORGE ALEXANDER · 2017 to 2022
$54.9M
Hospitals Sharing Patient Data and Biospecimens with Commercial Entities: Evidence-Based Translation to Improved PracticeR01TR004244 · NCATS · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI SPECTOR-BAGDADY, KAYTE KELLEHER · 2022 to 2025
$1.9M
NCATS NIH HHS R01 TR004244NCATS NIH HHS UL1 TR002240NIA NIH HHS U54 AG084520
6 · The paper itself

Abstract

Congress and other lawmakers must act to robustly protect direct-to-consumer genetic data and biospecimens into the future.

Indexed as

Direct-To-Consumer Screening and TestingGenetic PrivacyHumansUnited States

Identifiers

PMID40934319
PMCPMC12810892

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.