ArticleScandinavian journal of caring sciences2025
Family Caregivers' Experiences With Follow-Up Healthcare for Frontotemporal Dementia: A Narrative Inquiry.
Article in Scandinavian journal of caring sciences, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
1 citing paper in PubMed.
- Family Caregivers' Experiences With Follow-Up Healthcare for Frontotemporal Dementia: A Narrative Inquiry.Scandinavian journal of caring sciences · 2025Article
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Authors and funding
3 authors.
Funding
Abstract
introductionFrontotemporal dementia (FTD) is a neurodegenerative disease that often causes young-onset dementia and affects patients' behaviour and personality. Although FTD significantly burdens patients' family caregivers, their experiences with follow-up health care services remain poorly understood.
aimIn our study, we explored how family caregivers of patients with FTD have experienced follow-up health care for FTD, particularly their involvement in, influence over and support received during the pre- and post-diagnostic stages.
methodsWe conducted a narrative inquiry to explore family caregivers' experiences with follow-up health care services from their own perspectives.
resultsFamily caregivers reported that barriers to effective, individualised follow-up health care include patients' impaired insight due to FTD symptoms, inadequate competence and coordination between levels of care, and their own limited opportunities to participate and be recognised for their knowledge and familiarity with the patients.
conclusionFollow-up health care for FTD, beginning at diagnosis, should involve both health care professionals and family caregivers to ensure comprehensive support and address FTD's unique challenges. Our findings highlight the need for health care professionals to balance the patient's right to make decisions and the inclusion of family caregivers in the care process as crucial providers of person-centred care.
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