Evidence map›Paper›PMID 40926593›Full record

ArticleHealth policy and planning2025

Understanding the financial hardships faced by TB and HIV patients during the COVID-19 pandemic: a mixed-method study in Bandung and Yogyakarta, Indonesia.

Nasser Fardousi, Srila Nirmithya Salita Negara, Yanri Wijayanti Subronto, Yusuf Ari Mashuri, Qinglu Cheng, Luh Putu Lila Wulandari, I Wayan Cahyadi Surya Distira Putra, Siska Dian Wahyuningtias, Ari Probandari, Hasbullah Thabrany and 4 more

Abstract read
In one paragraph

Article in Health policy and planning, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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1 · What the graph read from it

What it found

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2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

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3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

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4 · The record

Corrections and comments

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5 · Who and what money

Authors and funding

14 authors.

Nasser FardousiDepartment of Infectious Disease Epidemiology and International Health, London School of Hygiene & Tropical Medicine, Keppel Street, London WC1E 7HT, United Kingdom.ORCID 0000-0002-0306-8612
Srila Nirmithya Salita NegaraCentre for Tropical Medicine, Faculty of Medicine, Public Health and Nursing, Universitas Gadjah Mada, Yogyakarta, Jl. Farmako Sekip Utara, Yogyakarta 55281, Indonesia.
Yanri Wijayanti SubrontoCentre for Tropical Medicine, Faculty of Medicine, Public Health and Nursing, Universitas Gadjah Mada, Yogyakarta, Jl. Farmako Sekip Utara, Yogyakarta 55281, Indonesia.
Yusuf Ari MashuriCentre for Tropical Medicine, Faculty of Medicine, Public Health and Nursing, Universitas Gadjah Mada, Yogyakarta, Jl. Farmako Sekip Utara, Yogyakarta 55281, Indonesia.
Qinglu ChengKirby Institute, University of New South Wales, Wallace Wurth Building (C27), Cnr High St & Botany St, UNSW, Kensington NSW 2033, Australia.ORCID 0000-0002-3701-8760
Luh Putu Lila WulandariKirby Institute, University of New South Wales, Wallace Wurth Building (C27), Cnr High St & Botany St, UNSW, Kensington NSW 2033, Australia.ORCID 0000-0002-3397-3648
I Wayan Cahyadi Surya Distira PutraCentre for Tropical Medicine, Faculty of Medicine, Public Health and Nursing, Universitas Gadjah Mada, Yogyakarta, Jl. Farmako Sekip Utara, Yogyakarta 55281, Indonesia.
Siska Dian WahyuningtiasCentre for Tropical Medicine, Faculty of Medicine, Public Health and Nursing, Universitas Gadjah Mada, Yogyakarta, Jl. Farmako Sekip Utara, Yogyakarta 55281, Indonesia.
Ari ProbandariCentre for Tropical Medicine, Faculty of Medicine, Public Health and Nursing, Universitas Gadjah Mada, Yogyakarta, Jl. Farmako Sekip Utara, Yogyakarta 55281, Indonesia.
Hasbullah ThabranyThinkWell.Global, Plaza Bank Index Level11, Jalan MH Thamrin No. 57, Jakarta 10350, Indonesia.
Virginia WisemanDepartment of Public Health, Faculty of Medicine, Universitas Sebelas Maret, Jl. Ir. Sutami 36A, Surakarta 57126, Indonesia.
Riris Andono AhmadCentre for Tropical Medicine, Faculty of Medicine, Public Health and Nursing, Universitas Gadjah Mada, Yogyakarta, Jl. Farmako Sekip Utara, Yogyakarta 55281, Indonesia.ORCID 0000-0001-9340-3922
David BoettigerKirby Institute, University of New South Wales, Wallace Wurth Building (C27), Cnr High St & Botany St, UNSW, Kensington NSW 2033, Australia.ORCID 0000-0002-5951-4503
Marco LiveraniDepartment of Global Health and Development, London School of Hygiene & Tropical Medicine, Keppel Street, London WC1E 7HT, United Kingdom.ORCID 0000-0003-0829-291X

Funding

Medical Research CouncilNational Institute for Health Research MR/V030825/1
6 · The paper itself

Abstract

The COVID-19 pandemic had significant widespread financial impacts, resulting in decreased household income, increased unemployment, and disrupted health services. Despite the higher prevalence of infections of tuberculosis (TB) and human immunodeficiency virus (HIV) in poorer populations, research on the financial challenges faced by these populations during the pandemic is still limited. Indonesia recorded the highest COVID-19 cases in Southeast Asia (6 815 156) while contending with the dual burden of HIV and TB. This study investigates the factors influencing out-of-pocket (OOP) payments and catastrophic health spending during the pandemic, alongside patients' challenges and coping mechanisms in Bandung and Yogyakarta, Indonesia. We employed a parallel convergent mixed-methods approach, combining quantitative analysis of OOP costs with qualitative interviews. The determinants of OOP payments were analysed using a two-part cluster-robust regression model. Catastrophic health spending was defined as OOP payments exceeding 10% of a household's annual income. Data on OOP spending were recorded via diaries, while qualitative data were gathered from in-depth interviews with TB and HIV patients and healthcare workers from January to October 2022. The findings indicated that 5.13% [95% confidence interval (CI): 2.99-7.28] of households incurred catastrophically. The median household spent USD 8.48 OOP, with nonmedical expenses comprising the largest share (median USD 5.93). Key predictors of higher costs included facility location in Yogyakarta (OOP costs difference USD 23.84, 95% CI: 9.90-37.77, P < .001), seeking care from public hospitals (USD 17.37, 95% CI: 8.83-25.90, P < .001), and the absence of health insurance (USD 10.49, 95% CI: 2.40-18.58, P = .011). Patients reported that job losses during lockdowns exacerbated financial strain, while coping strategies documented included borrowing, family contributions, and selling assets. This is the first study to focus on OOP spending and the financial hardships experienced by TB and HIV patients in Indonesia during the pandemic, providing insights for targeted policy and preparedness efforts to alleviate the financial burden during large-scale public health crises.

Indexed as

COVID-19Financial StressHealth ExpendituresHIV InfectionsTuberculosisAdultCost of IllnessFemaleHumansIndonesiaMaleMiddle AgedPandemicsQualitative ResearchSARS-CoV-2COVID-19financial hardshipHIVIndonesiamixed-methodstuberculosis

Identifiers

PMID40926593
PMCPMC12605723

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.