Evidence map›Paper›PMID 40924052›Full record

ArticleJournal of autism and developmental disorders2025

Adults with Autism Have Numerous Needs, and So Do Their Parents!

Cyrielle Derguy, L Frybourg, M Dexet, E Cappe

Abstract read
PubMed Publisher
In one paragraph

Article in Journal of autism and developmental disorders, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Cyrielle DerguyUniversité Paris Cité, LPPS, F-92100, Boulogne-Billancourt, France. cyrielle.derguy@parisdescartes.fr.ORCID http://orcid.org/0000-0002-0424-0621
L FrybourgUniversité Paris Cité, LPPS, F-92100, Boulogne-Billancourt, France.
M DexetAssociation pour Adultes et Jeunes Handicapés (APAJH) de la Haute Vienne, Limoges, France.
E CappeUniversité Paris Cité, LPPS, F-92100, Boulogne-Billancourt, France.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Parents of adults with autism spectrum disorders (ASD) face significant challenges, including high vulnerability to stress and a lack of adequate support services. However, there are currently few support systems based on a genuine assessment of their needs. This is particularly true in the French context, where there are delays in supporting families and addressing autism in adulthood. This exploratory study aims to identify the specific needs of parents of adults with ASD, both with and without intellectual disabilities, in order to inform the development of relevant support strategies. Thirty parents of adults with autism spectrum disorders (ASD) participated in semi-structured interviews. An inductive thematic analysis was performed. Our findings identified five overarching themes of needs, encompassing 13 sub-themes. The analysis also highlighted differences in the nature of reported needs based on whether the autistic adult has an associated intellectual disability. Our results are discussed to propose practical recommendations for formalizing a support offer for parents that takes into account the reality of their needs.

Indexed as

AdultsAutism spectrum disordersParents’ needsSupport services

Identifiers

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.