Evidence map›Paper›PMID 40923526›Full record

ArticleHealth information management : journal of the Health Information Management Association of Australia2026

ICD-11 "by the people for the people": The open feedback proposal platform.

Islam Ibrahim, Danielle A Southern, Meng Zhang, Brooke Macpherson, Carine Alsokhn, Eva Krpelanova, Nenad Kostanjsek, Robert Jakob

Abstract read
In one paragraph

Article in Health information management : journal of the Health Information Management Association of Australia, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Revision process for theBulletin of the World Health Organization · 2026
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Islam IbrahimMinistry of Health, Kuwait.ORCID 0000-0002-6521-1947
Danielle A SouthernUniversity of Calgary, Canada.ORCID 0000-0002-0006-0033
Meng ZhangCollaborating Centre for the WHO Family of International Classifications in China, People's Republic of China.ORCID 0000-0003-1112-9822
Brooke MacphersonAustralian Institute of Health and Welfare, Australia.
Carine AlsokhnWorld Health Organisation, Switzerland.ORCID 0000-0002-3828-8527
Eva KrpelanovaWorld Health Organisation, Switzerland.
Nenad KostanjsekWorld Health Organisation, Switzerland.
Robert JakobWorld Health Organisation, Switzerland.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundICD-11's digital architecture and granularity distinguish it from previous revisions and expand its applicability beyond mortality statistics and public health. The official ICD-11 version is updated annually. However, a separate online Maintenance Platform is continuously updated and hosts the Proposal Platform: a novel online tool that enables interested parties from all over the world to contribute to ICD-11 content. Anyone can register on the Platform to propose updates, such as adding new medical terms or improving existing descriptions, helping keep the classification relevant and inclusive. As a public, transparent system, users can view or comment on other users' proposals. Proposals are carefully reviewed by expert WHO committees through a transparent, multi-step process that ensures scientific accuracy and consistency. High-priority updates, like emerging health conditions, can be fast-tracked for quicker inclusion. Once a proposal is accepted, it becomes effective in the following update. A clear justification is provided for rejected proposals. Since ICD-11 came into effect, most suggestions from users have been successfully implemented.

objectiveThis article describes the proposal submission process, the rigorous proposal review process, and the roles of the WHO reference groups and committees involved.

conclusionICD-11 is a free, digital global health classification that anyone can help improve by submitting proposals through an open, transparent platform.Implications for health information management practice:This inclusive system empowers users worldwide to shape ICD-11 to reflect the evolving real-world medical and public health practice and emerging needs. This also prevents the need for country-specific modifications, ultimately improving the comparability of clinical data at the international level.

Indexed as

International Classification of DiseasesDigital HealthGlobal HealthHumansWorld Health Organizationclinical codinghealth information managementhealth information systemsICD-11ICD-11 foundationICD-11 linearisationICD-11 proposal platformInternational Classification of Diseasesmedical informaticsWHO family of international classifications network

Identifiers

PMID40923526
PMCPMC13558802

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.